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Last author of this study has also worked on ME/CFS, and is in support of the LP study that is ongoing at the same university as this study.

There was a recently published study on motivational interviews used by social workers to help reduce sick leave that found no benefit compared with usual care (I have only read the abstract). Thread on study: Effectiveness of 'motivational interviewing' on sick leave: a randomized controlled...

Objective This study aimed to evaluate the effectiveness of motivational interviewing (MI) – a counselling approach offered by caseworkers at the Norwegian Labor and Welfare Administration (NAV) – on return to work (RTW) for individuals sick-listed for ≥8 weeks due to any diagnoses. MI was...

A Swedish news channel have asked for people to tell their stories of how the covid pandemic has affected them. Lots of long-covid stories (in Swedish). https://www.svt.se/nyheter/lokalt/stockholm/chatt-har-du-kvar-symtom-efter-covid

Anecdotally there are lots of people coughing at work. So even though NIPH actually advises to "stay at home if (symptomatic) sick" the attitude is that it's no problem. We even share a building with frail, mostly elderly patients.

Not exactly long covid perhaps, but one of the prominent "ME is psychological" Norwegian Institute of Public Health employees are in the media telling everyone not to think about (long) covid. Nothing to worry about.

I feel it's silly for them to say a suggestion will not be enough for the majority of patients to reach the activity thresholds. The majority of Norwegians do not meet this criteria, even without having any conditions to worry about, and this is not unique for Norwegians.

Sorry but :rofl: Six months and one year is pretty bad for most people to be suffering after an initial mild infection.

At least the study at NTNU. And a number of individuals from NIPH have made general comments on it being "interesting", "provides hope" and similar.

I have hope that some of the large cohort studies with biobanks can be used for something at some point. But it would help to know what to look for. Maybe if decodeME finds some genes of interest these could be looked up in older biosamples and then checked against sick leave records or similar...

Forskning.no wrote about the study today, and I am always so happy when there is an article about ME without any reference to the "two sides" etc. :)

As long as we take into account that when you have a few thousand participants in your study, individual datapoints just look like a giant blob :bag: I would like "Metabolic Equivalent of Task" data for pwME. While METs have problems (the "normal" is based on a single caucasian male in his...

Yes! My heartrate varies throughout my cycle, and so does the energy burned on my fitbit in response to whatever it is I'm doing (though this is not weird since the algorithm likely uses heartrate to calculate energy used). I also feel more able to do stuff in my follicle phase.

I don't think it is that easy that numbers "speak for us", and even with a lot of work to make numbers seen healthcare can be slow to act. Take undernutrition for example, we are not lacking the numbers that this is a huge problem. The numbers (in my country) are easily available. The...

They don't, unfortunately.

A lot of people have diets high in starches together with vitamin D and iron deficiencies. That's not saying a lot.

As they write it may reflect inflammation. Ferritin is an acute phase reactant, ie. it increases in response to infection.

They are at least willfully avoiding to answer the critique they are getting, and using their authority as researchers to get away with not answering questions. As here, where Wyller is allowed to say their Lightning Process study uses "gold standard" methodology just because it is randomised...

But we also saw people who became more active, had more time to make "healthy homemade meals" and increased their sleep, all factors that could improve metabolic health. I'm not sure if the number of people on the verge of getting full-blown diabetes who ate more comfort foods and became less...

What makes it so hard is that diabetes has been on the rise for a long while already, and even pre-covid it was set to double by 2050. Edit: Not talking about individual countries here, increasing pwDiabetes is a global health issue.