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23% of working-age adults disabled is surprising.

Right - mental note - NEVER donate to Simmaron Research. Animal models do NOT help with human illness. See https://www.s4me.info/threads/research-charities-policies-on-funding-research-that-uses-animals.23099/ and...

I lost my sense of smell at various times during COVID, and do so at times even now, then it comes back again. It seems to happen quite often, although in at least one case my sense of smell actually increased during apparent COVID...

It seems to be increasingly common, including in how politicians speak. It's common in documentaries too now, which I get so fed up with that I switch off.

There is repeated reference to treatment. Surely there is no treatment for ME/CFS.

Right, this is seriously weird - could it be one of the many phony, possibly artificially-produced 'studies'? It says: "A twelve-week structured VR program may enhance severity..." but it also says: "In this study, we demonstrated that a 12-week vestibular rehabilitation program...

I think there's a percentage symbol missing in: "2.8 of the study participants".

I think you mean @Simon M?

I used to believe in all sorts of psychological stuff and other weird things (e.g. aliens visiting us!) but I don't really believe any of it now. Having studied science to Masters level I think I became able to dismiss most of it, although I'm fascinated by the weirder theories about astronomy...

Merged thread DIY SOS for Family with Ehlers-Danlos syndrome, postural orthostic tachycardia syndrome, fibromyalgia and gastroparesis The Big Build - Bangor DIY SOS Series 31 For the first time ever, the DIY SOS team head to Bangor in Northern Ireland, the childhood hometown of our build...

Merged thread BBC article Long COVID patient claims Lightning Process helped This was on the BBC website, and includes the following: "Sue (patient's wife) also worked on pacing his energy levels, which led to some improvements alongside "an exceptionally good diet" with no ultra processed...

Marketing - that's pretty significant! I think that casts some doubt on the findings.

An unfortunate consequence of the control measures in the US seems to be that relatively-benign treatments like kaolin and morphine, which used to be available over the counter in UK chemist shops, are no longer available without prescription. I used to get a lot of diarrhoea, and found K & M...

Can someone tell me what vOTU stands for?

In case anyone doesn't know, ALS is essentially the same as Motor Neurone Disease (MND).

Wouldn't a larger study be necessary to "provide insight into the sex-specific pathophysiology of ME/CFS"?

I don't know how I would rate in such a study - I am definitely intolerant of more than about one glass of wine now, but in the early years of ME I drank as usual, i.e. a lot - and didn't suffer for it. I am still not severely affected by ME, although generally worse than at the start, but I...

I found the author's website including references to the book here: https://www.ginnysmithscience.com/overloaded

There's no mention of ME. I'm pretty sure that my ME is autoimmune. But I'm intrigued that 1 in 10 people have autoimmune disease.

Nice one - thanks very much, @Adam pwme.