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  1. Andy

    Inspiring stories from people with ME/CFS

    Personally, I don't find these kinds of lists useful. What I have found useful in dealing with my own illness is rather than focus on what rare, exceptional or just plain lucky people are able to achieve is to focus on achieving as much as I can with the limitations that I have, and feeling...
  2. Andy

    ICanCME Research Network

    From the ICanCME Research Network on Twitter, "Funding announcement: ICanCME 2023 ME Stars of Tomorrow #Scholarship Program: https://mailchi.mp/de70b9160260/icancme-research-network-funding-announcement_sot-2023… Deadline to apply is August 30th, 2023. #MECFS #MyalgicE #pwME #MedTwitter...
  3. Andy

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    From the NIH funded ME/CFS Research Network on Twitter, "BIG Data News! New comprehensive dataset from #MECFSnet partners at @jacksonlab and @BatemanHorne. More than 1,200 variables --the FIRST publicly available dataset with GUIDS. Apply for access today! https://ow.ly/hncu50Pqhks "
  4. Andy

    USA: The RECOVER Initiative - Long Covid research

    NIH launches trials for long-COVID treatments: what scientists think "The US National Institutes of Health (NIH) announced yesterday that it will launch its first trials to test the safety and efficacy of treatments against long COVID. These trials will focus on therapies aimed at some of the...
  5. Andy

    Review Infectious Mononucleosis: An Updated Review, 2023, Leung et al

    Background: Infectious mononucleosis is common among adolescents and young adults. Although the majority of cases resolve spontaneously, life-threatening manifestations, and complications have been recognised. Objective: The purpose of this article is to familiarize clinicians with the clinical...
  6. Andy

    Post-infectious irritable bowel syndrome after intercontinental travel: a prospective multicentre study 2023

    "33 Out of 960 (3.4%) travellers developed IBS without TD [Traveller's Diarrhea] after travel while 65 out of 539 at risk travellers developed PI-IBS (relative risk: 3.51, 95%CI 2.34-5.26, p<0.001). In addition, the majority (78.7%) retained PI-IBS symptoms up to 12 months after travel." Sadly...
  7. Andy

    Post-infectious irritable bowel syndrome after intercontinental travel: a prospective multicentre study 2023

    By longitudinally following a large cohort of intercontinental travellers, this study highlights the importance of considering multiple risk factors to comprehend post-infectious Irritable Bowel Syndrome (PI-IBS). Stomach cramps, antibiotic use and nausea during travel were among the variables...
  8. Andy

    Germany: Guide for the management of consequences of viral disease with SARS-CoV-2 from the point of view of occupational therapy 2023 Costa

    Summary Consequences of viral disease with SARS-CoV-2 affect the biopsychosocial health and thus the everyday life of those affected, their opportunities for action and participation in all areas of life. In all phases of care, occupational therapists have numerous options when it comes to...
  9. Andy

    Ed Yong Articles on Long Covid & ME/CFS

    Ed has posted this on Twitter, which shows how valuable good articles like this one can be. "Whenever I write about long-covid or ME, I get waves of emails from chronically ill folk who feel seen/heard. But with this piece, I'm *also* hearing from healthy people saying they finally get what...
  10. Andy

    International: Science for ME social media posts

    News in Brief post for July on Reddit. https://www.reddit.com/r/cfs/comments/15f622h/news_in_brief_posts_for_july_2023_covering_mecfs/
  11. Andy

    Correlation of fatigue with disability and accelerometer-measured daily physical activity in patients with relapsing-remitting MS 2023 Luostarin et al

    The lead author and several others are from the Institute of Biomedicine, Sports and Exercise Medicine, University of Eastern Finland, Kuopio, Finland, who state on their website, "We conduct research ranging from population-based studies to molecular medicine to uncover basic mechanisms behind...
  12. Andy

    Functional Overlay Model of Persistent Post-Concussion Syndrome, 2023, Mavroudis et al

    Abstract Persistent post-concussion syndrome (PPCS) is a complex and debilitating condition that can develop after head concussions or mild traumatic brain injury (mTBI). PPCS is characterized by a wide range of symptoms, including headaches, dizziness, fatigue, cognitive deficits, and...
  13. Andy

    Interoception in functional motor symptoms and functional seizures: ... evidence of intact accuracy alongside... 2023 Millman, Edwards, Chalder et al

    Full title: Interoception in functional motor symptoms and functional seizures: Preliminary evidence of intact accuracy alongside reduced insight and altered sensibility Highlights Intact interoceptive accuracy in functional motor symptoms/seizures (FMS/FS). Potentially reduced...
  14. Andy

    Correlation of fatigue with disability and accelerometer-measured daily physical activity in patients with relapsing-remitting MS 2023 Luostarin et al

    Highlights A significant correlation was found to exist between fatigue and disability. Total daily activity correlated with fatigue. A lower disability rate, better physical condition, and higher daily-living activity were found to predict lower fatigue levels. Abstract Background Fatigue is...
  15. Andy

    International: Science for ME social media posts

    Published papers posts for w/c 24th July Facebook: https://www.facebook.com/sci4me/posts/pfbid02ksu4MRTdsxqdGKCqnpYTNWQ47N5H49pGBM7Lrvq69kmoB3uak1taMi6tdAZFDHkpl Mastodon: https://med-mastodon.com/@s4me/110807646655837344
  16. Andy

    Evidence for Impaired Renin Activity in Postural Orthostatic Tachycardia Syndrome, 2023, Medic Spahic et al

    Abstract Background: Postural orthostatic tachycardia syndrome (POTS) is a heterogeneous condition predominantly affecting autonomic control of the cardiovascular system. Its extensive symptom diversity implies multi-organ involvement that interacts in ways still requiring full exploration...
  17. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 24th July Facebook: https://www.facebook.com/sci4me/posts/pfbid034fAkjynLdocfcARt6PBdx88svp7ypvn5DsDXVbrmetf1R6LUrEdskRPPekURNGcfl Mastodon: https://med-mastodon.com/@s4me/110803012919294348
  18. Andy

    Clinical Impact of Systematic Assessment and Psychoeducation ... of Adolescents with Severe Functional Somatic Disorders:... 2023 Hansen Kallesø et al

    Full title: Clinical Impact of Systematic Assessment and Psychoeducation in Specialized Treatment of Adolescents with Severe Functional Somatic Disorders: Results from the AHEAD Study Abstract Functional somatic disorders (FSD), characterized by persistent and disabling physical symptoms, are...
  19. Andy

    Sleeping and Dietary Factors Associated with Chronic Fatigue Syndrome in Taiwanese Preschoolers 2023 Su-Fen Huang and Hui-Ying Duan

    "Assessment Scale for Symptoms of Fatigue in Children To analyze the findings of this study in relation to those of studies conducted in other countries, instead of developing a scale assessing symptoms of fatigue in children in Mandarin, this study adopted the ten-item scale assessing symptoms...
  20. Andy

    Sleeping and Dietary Factors Associated with Chronic Fatigue Syndrome in Taiwanese Preschoolers 2023 Su-Fen Huang and Hui-Ying Duan

    Abstract The purpose of this research was to investigate the sleeping and dietary factors associated with the prevalence of chronic fatigue syndrome among Taiwanese preschoolers. Five-year-old preschoolers were randomly selected using a stratified multistage random cluster sampling method. The...
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