Personally, I don't find these kinds of lists useful. What I have found useful in dealing with my own illness is rather than focus on what rare, exceptional or just plain lucky people are able to achieve is to focus on achieving as much as I can with the limitations that I have, and feeling...
From the ICanCME Research Network on Twitter,
"Funding announcement: ICanCME 2023 ME Stars of Tomorrow #Scholarship Program: https://mailchi.mp/de70b9160260/icancme-research-network-funding-announcement_sot-2023… Deadline to apply is August 30th, 2023. #MECFS #MyalgicE #pwME #MedTwitter...
From the NIH funded ME/CFS Research Network on Twitter,
"BIG Data News! New comprehensive dataset from #MECFSnet partners at @jacksonlab and @BatemanHorne. More than 1,200 variables --the FIRST publicly available dataset with GUIDS. Apply for access today! https://ow.ly/hncu50Pqhks "
NIH launches trials for long-COVID treatments: what scientists think
"The US National Institutes of Health (NIH) announced yesterday that it will launch its first trials to test the safety and efficacy of treatments against long COVID. These trials will focus on therapies aimed at some of the...
Background: Infectious mononucleosis is common among adolescents and young adults. Although the majority of cases resolve spontaneously, life-threatening manifestations, and complications have been recognised.
Objective: The purpose of this article is to familiarize clinicians with the clinical...
"33 Out of 960 (3.4%) travellers developed IBS without TD [Traveller's Diarrhea] after travel while 65 out of 539 at risk travellers developed PI-IBS (relative risk: 3.51, 95%CI 2.34-5.26, p<0.001). In addition, the majority (78.7%) retained PI-IBS symptoms up to 12 months after travel."
Sadly...
By longitudinally following a large cohort of intercontinental travellers, this study highlights the importance of considering multiple risk factors to comprehend post-infectious Irritable Bowel Syndrome (PI-IBS). Stomach cramps, antibiotic use and nausea during travel were among the variables...
Summary
Consequences of viral disease with SARS-CoV-2 affect the biopsychosocial health and thus the everyday life of those affected, their opportunities for action and participation in all areas of life. In all phases of care, occupational therapists have numerous options when it comes to...
Ed has posted this on Twitter, which shows how valuable good articles like this one can be.
"Whenever I write about long-covid or ME, I get waves of emails from chronically ill folk who feel seen/heard. But with this piece, I'm *also* hearing from healthy people saying they finally get what...
The lead author and several others are from the Institute of Biomedicine, Sports and Exercise Medicine, University of Eastern Finland, Kuopio, Finland, who state on their website, "We conduct research ranging from population-based studies to molecular medicine to uncover basic mechanisms behind...
Abstract
Persistent post-concussion syndrome (PPCS) is a complex and debilitating condition that can develop after head concussions or mild traumatic brain injury (mTBI). PPCS is characterized by a wide range of symptoms, including headaches, dizziness, fatigue, cognitive deficits, and...
Full title: Interoception in functional motor symptoms and functional seizures: Preliminary evidence of intact accuracy alongside reduced insight and altered sensibility
Highlights
Intact interoceptive accuracy in functional motor symptoms/seizures (FMS/FS).
Potentially reduced...
Highlights
A significant correlation was found to exist between fatigue and disability.
Total daily activity correlated with fatigue.
A lower disability rate, better physical condition, and higher daily-living activity were found to predict lower fatigue levels.
Abstract
Background
Fatigue is...
Published papers posts for w/c 24th July
Facebook: https://www.facebook.com/sci4me/posts/pfbid02ksu4MRTdsxqdGKCqnpYTNWQ47N5H49pGBM7Lrvq69kmoB3uak1taMi6tdAZFDHkpl
Mastodon: https://med-mastodon.com/@s4me/110807646655837344
Abstract
Background: Postural orthostatic tachycardia syndrome (POTS) is a heterogeneous condition predominantly affecting autonomic control of the cardiovascular system. Its extensive symptom diversity implies multi-organ involvement that interacts in ways still requiring full exploration...
News in Brief posts for w/c 24th July
Facebook: https://www.facebook.com/sci4me/posts/pfbid034fAkjynLdocfcARt6PBdx88svp7ypvn5DsDXVbrmetf1R6LUrEdskRPPekURNGcfl
Mastodon: https://med-mastodon.com/@s4me/110803012919294348
Full title: Clinical Impact of Systematic Assessment and Psychoeducation in Specialized Treatment of Adolescents with Severe Functional Somatic Disorders: Results from the AHEAD Study
Abstract
Functional somatic disorders (FSD), characterized by persistent and disabling physical symptoms, are...
"Assessment Scale for Symptoms of Fatigue in Children
To analyze the findings of this study in relation to those of studies conducted in other countries, instead of developing a scale assessing symptoms of fatigue in children in Mandarin, this study adopted the ten-item scale assessing symptoms...
Abstract
The purpose of this research was to investigate the sleeping and dietary factors associated with the prevalence of chronic fatigue syndrome among Taiwanese preschoolers. Five-year-old preschoolers were randomly selected using a stratified multistage random cluster sampling method. The...
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