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Gonna have to find who polices the police first. Then maybe who polices the police who polices the police. Then eventually the turtle in charge, or something.

What a joke organization. They talk about listening, but never actually listen. It's all empty political slogans, hollow words that promote the idea of an organization that has nothing to do with what Cochrane actually is. Strongly reminds of populist politics, using voters as props on a stage...

Academia really needs to get serious about useless research like this. This foolish nonsense is a complete waste of public funds and serves absolutely no purpose whatsoever. Bits of intelligence without a single bit of wisdom, it's like they hear words they don't understand and find nothing...

Damn. How did such a rotten organization ever become the standard bearer of medical evidence? Because wow does it reveal a lot. They truly don't give a single frack about their mission, it's all about personal self-advancement. Absolutely zero respect for patients or any of their stated...

Problem with that is that there is no actual term for the feeling sick every day that most of us have, no matter what you do. Fatigue ain't it. There is no term for this other than "malaise" which is also awful because it can be used to mean anything. To me it's a sort of mix between being...

Yeah, makes sense. How was it mentioned recently, "we don't like to give ME/CFS diagnoses"? They still don't. To work out would have required the system to fix itself beforehand. So we have studies on ME hindered by the refusal to acknowledge it, which makes it far more difficult to do because...

Considering that the obvious best way to be sure is to go ahead and do the research, this is extremely disingenuous. It's not as if there are actual reasons for this separation, it's completely arbitrary. But that was expected, any separation is purely political and ideological, far more about...

Damn, that's so disappointing. Such an easy goal to meet, all it would have taken is the tiniest bit of support and messaging. The LC clinics alone could have easily met that goal. The continued forced separation is really screwing everyone over.

Like never trying this again? Must be hard that the first thing they agree on is that what was done before was crap. It bruises egos and that makes everything that follows antagonistic. Rightfully, but it's hard to accept as professionals that you have delivered garbage. We find the same with...

Not sure if in the same document, but I think I saw comments from a medical association saying that ME should be excluded from this because they're not sure yet whether there is an actual overlap. Of course this being the way to be sure doesn't factor in the circular reasoning. Still motivated...

And the opposite is also true: had everything else been equal, but with the addition of some mark somewhere that is unique and unmistakable, everything would have happened differently. Even if it was simply a benign side-effect. It's all about social validation, about receiving the blessing that...

Yeah. I don't think it's credible that progress with peptic ulcers would have been changed much, better or worse, by somehow finding the perfect definition. Same with any pre-breakthrough disease. Medicine doesn't care about definitions. It cares about pathophysiology. We could produce a...

Absolute cringe. Dude talks about himself like he's some sort of authority. He's accomplished nothing and is as much on the wrong side of this as HIV deniers are with AIDS. This "study" is just another useless trash that will be completely forgotten. For all the talk about a participation...

Ultimately, being taken seriously at some point or another doesn't really change the outcome. Maybe the only significant change is over getting disability, I'm sure it plays into that a lot (that person deserves it, clearly not a scrounger, while this other person just looks like they're the...

This is honestly so close to children's books and their "and everyone lived happily ever after". It depicts a desirable outcome as if it's usually the case, in a context where it's basically never the case. As straight up delusional as weird bank or financial marketing going on about "you're...

Yup. And when you add the importance of appearance, how low economic status is perceived as low worth and achievement, where ME is more or less defined as a failure of achievement, or whatever, this basically tells us nothing useful at all, since everything is dependent on a distorted system of...

Oh, did playing "the floor is lava but sometimes it's OK to walk on it" not work out? How odd. The next decade or so will be an era of extreme nihilism and basically defying experts. And unless there is a marked separation between actual experts and politicized expertise, I'm sorry but in other...

Wow, that highly-paid professional is really showing his expert skills, noticing something that's been so obvious for 2.5 years that millions have been screaming it, especially the people who have been ill for years, which apparently this dude never noticed before. Has he tried rehabilitating...

So, some kind of "global alliance for vaccines" is spewing out ignorant pseudoscientific disinformation about an issue that relates, in some way, to vaccines. But also just the fact that they do at all is absurd on its own. That's just great. What is it with the health care industry that makes...