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  1. Andy

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    "Nature: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al" The journal it is actually published in is Scientific Reports, not actually Nature itself.
  2. Andy

    Research funding: Examples needed of ME research projects failing due to not getting funding

    In case it helps, the forum has a number of 'themes', see this thread for further details, Did you know that the forum has several different 'themes'? Aka dark and light modes and how to change them.
  3. Andy

    What do medical students think about functional neurological disorders? 2023 Escribano-Paredes et al

    Functional neurological disorders (FND) are a frequent reason for visits in neurology. However, specific training on these disorders during undergraduate and residency training is limited. This study assesses the knowledge, attitude and exposure of medical students to FNDs before completing...
  4. Andy

    Synbiotic Supplementation Improves Quality of Life and Inmunoneuroendocrine Response in Patients with FM: 2023 Hinchado et al

    Full title: Synbiotic Supplementation Improves Quality of Life and Inmunoneuroendocrine Response in Patients with Fibromyalgia: Influence of Codiagnosis with Chronic Fatigue Syndrome Fibromyalgia (FM) and chronic fatigue syndrome (CFS) are two medical conditions in which pain, fatigue...
  5. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    We are, of course, concerned that we are a considerable way away from our target number of DNA donors. A lot of discussion has taken place about what we can do to improve these figures, and we are working on multiple ways to improve this. I'm afraid I don't have the resources to reply further...
  6. Andy

    Functional Neurological Disorders - A Common but Often Unrecognized Diagnosis 2023 Barth and Gegusch

    Functional neurological disorders are frequent and diverse in the clinical presentation. Psychological factors are part of the development and perpetuation of symptoms; psychiatric comorbidities may be present, but are not an obligatory diagnostic criterion. The diagnosis is primarily made on...
  7. Andy

    BPS attempts at psychologizing Long Covid

    Perhaps it is TikTok, that could explain a lot for all of us ;)
  8. Andy

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    From the list above with my observations. A Long Covid study with no obvious links to studying ME/CFS. NIAID 1K23AI171263-01 - Evaluating the Epidemiology and Determinants of Neurologic Post-acute Sequelae of SARS-CoV-2 PURPURA, LAWRENCE COLUMBIA UNIVERSITY HEALTH SCIENCES NY $192,102...
  9. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Redfox has kindly posted the last public update we have made on the participant figures above; I've asked for an update on the current figures and will come back when I have that. We don't publish a running total on the website. As far as I know it wouldn't be possible to automate it, so it...
  10. Andy

    United Kingdom: BT Home Essentials broadband for people on specific benefits

    Money Saving Expert now includes social tariffs as an option in the broadband comparison tool. "Compare social tariffs and standard tariffs side-by-side in our enhanced tool. In the main, social broadband deals are for those on universal credit, though most also allow those receiving pension...
  11. Andy

    USA: Cornell Center for Enervating NeuroImmune Disease and Maureen Hanson

    "We have placed a description of the projects to be carried out by our renewed NIH ME/CFS Center onto our website. More information about opportunities for subject participation will be provided later. https://neuroimmune.cornell.edu/research/"
  12. Andy

    USA: Cornell Center for Enervating NeuroImmune Disease and Maureen Hanson

    Yep, it's a follow on from their original CRC grant. Given that the NIH recently re-promoted their funding call for the CRCs, see https://www.s4me.info/threads/usa-nih-national-institutes-of-health-news.18724/page-9#post-468953, I'm guessing that, unless there are other announcements to be made...
  13. Andy

    Long Covid in the media and social media 2023

    I've never been completely convinced that Blitshteyn has 'got' ME/CFS in the past, and her recent tweets advocating for 'well-designed' LC exercise studies hasn't changed my mind.
  14. Andy

    Resources about the history of M.E./CFS

    I would imagine there will be duplication with suggestions made here already but this thread will probably be helpful, Suggestions of good sources on the background to the ME saga, PACE, etc. up to the new NICE guideline
  15. Andy

    Autonomic dysfunction and exercise intolerance in concussion: a scoping review 2023 Pelo et al

    Purpose: Concussion commonly results in exercise intolerance, often limiting return to activities. Improved understanding of the underlying mechanisms of post-concussive exercise intolerance could help guide mechanism-directed rehabilitation approaches. Signs of altered cardiovascular autonomic...
  16. Andy

    Effectiveness of a blended multidisciplinary intervention for patients with moderate [MUPS] (PARASOL): 2023 van Westrienen et al

    Full title: Effectiveness of a blended multidisciplinary intervention for patients with moderate medically unexplained physical symptoms (PARASOL): A cluster randomized clinical trial Introduction In patients with moderate Medically Unexplained Physical Symptoms (MUPS), interventions focusing...
  17. Andy

    Psychiatric disorders and the onset of self-reported fibromyalgia and chronic fatigue syndrome: The lifelines cohort study 2023 Creed

    And as 'luck' would have it, here are people on Twitter discussing very similar experiences.
  18. Andy

    Psychiatric disorders and the onset of self-reported fibromyalgia and chronic fatigue syndrome: The lifelines cohort study 2023 Creed

    Well, it depends on how seriously they are affected, and what they are told by health professionals, and what they themselves believe about such illness. Very roughly, I had 15 years of progressively worsening symptoms before starting to seek help from the NHS, and it took another 10 years of...
  19. Andy

    Psychiatric disorders and the onset of self-reported fibromyalgia and chronic fatigue syndrome: The lifelines cohort study 2023 Creed

    He has been a co-author on several recent papers based on the Lifelines data. Publications list, https://loop.frontiersin.org/people/1497122/publications ETA: That is only a partial list, here is his Researchgate publication list, https://www.researchgate.net/profile/Francis-Creed, which shows...
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