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By the way, someone in my group tried ChatGPT and asked some questions about ME/CFS in Hungarian. Not just in general but also about how you can get good info about ME/CFS. And ChatGPT said my website is the Hungarian ME/CFS website, the one recommended for information about the disease in...

Long article about treating long covid with LDN in Rolling Stone: Can an Addiction Drug Treat Long Covid? Digging into the research, Korbutov learned that while naltrexone only has approval from the U.S. Food and Drug Administration (FDA) for treating people recovering from addiction to heroin...

Post copied from the Long Covid in the media thread Long article about treating long covid with LDN in Rolling Stone: Can an Addiction Drug Treat Long Covid? Digging into the research, Korbutov learned that while naltrexone only has approval from the U.S. Food and Drug Administration (FDA) for...

The situation with the Austrian petition is a bit confusing to me (you can find comments about it earlier in this thread but it also had its own thread here). Because I remember how the government reacted to it was disappointing. But now CFS Hilfe, the Austrian patient org posted this on...

I'm talking about the subjective outcome measure + no control group combo, which we would never accept from a BPS study as convincing or promising. It should be the same standards for everyone. We have actimetry, a 6-minute walk test, it doesn't need to be self-reported improvement. Maybe these...

Self-reported symptoms, no control group.

Full title: Impact of the COVID-19 pandemic on clinical autonomic practice in Europe A survey of the European Academy of Neurology (EAN) and the European Federation of Autonomic Societies (EFAS) Abstract Objective To investigate the impact of the coronavirus-disease-2019 (COVID-19) pandemic...

Do they only expect it to work in the early stage?

I guess that must be a bad translation in the paper then! "Oxiológia" is not a common word even in Hungarian, I've never heard it but it seems to mean emergency medicine.

Two preprints on ChatGPT's clinical decisions/diagnoses, one American, one Hungarian. Assessing the Utility of ChatGPT Throughout the Entire Clinical Workflow, Rao et al Abstract IMPORTANCE Large language model (LLM) artificial intelligence (AI) chatbots direct the power of large training...

I'm quite sure it must be a parody sort of account. Btw, short personal story: yesterday a person with LC was asking about the reactivated EBV theory in my group and what we think. And another person with LC replied and also added that now, because of long covid doctors are also starting to...

Abstract The SARS-CoV-2 Omicron (B.1.1.529) variant has been associated with less severe acute disease, however, concerns remain as to whether long-term complaints persist to a similar extent as for earlier variants. Studying 1 323 145 persons aged 18-70 years living in Norway with and...

Hm. It is kind of like including Harvey Weinstein and the likes on such a list on a website for women's issues and then calling it a safe space. Because both of these sides are somehow equally responsible for the current heated situation and the stalling of the field, all we need is a bridge...

Abstract Background Symptom persistence in non-hospitalized COVID-19 patients, also known as Long COVID or Post-acute Sequelae of COVID-19, is not well characterized or understood, and few studies have included non-COVID-19 control groups. Methods We used data from a cross-sectional COVID-19...

Yes, he was also invited to the long covid symposium of the Hungarian Academy of Sciences last year and I wrote about what he said here. He conveniently twisted things the way it fit his narrative.

I think I'm still in that early stage when this happens for some people. I remember someone with the same early hypersomnia mentioned on this forum that for him it turned into insomnia after about ten years. It is weird hearing about these experiences. A bit like sitting on death row not knowing...

CNN: How to help friends and employees living with long Covid Be compassionate: Many with long Covid feel stigmatized or invalidated by a world eager to move past the pandemic. So at a most basic level, Prior suggests, begin from a place of empathy. “There is a sort of toxic idea that people...

National Geographic covering this study and also this one: Chronic fatigue syndrome is a puzzle. Your gut microbiome may have the key. "New research reveals connections between certain gut bacteria and chronic fatigue syndrome, an ailment often connected to long COVID."

National Geographic covering this study and also this one: Chronic fatigue syndrome is a puzzle. Your gut microbiome may have the key. "New research reveals connections between certain gut bacteria and chronic fatigue syndrome, an ailment often connected to long COVID."

Oh, Scheibenbogen is included, good.