Search results

Here are the official documents from Region Stockholm, the minutes of the meeting. https://www.regionstockholm.se/politik/politiska-organ/halso--och-sjukvardsnamnden/HSN-sammantraden-2023/#--chn-3680ecec55663227581-c2a7e9293a885271146-0d7d594c75e55351843

News article about the decision Beslutet: Smärtkliniker tas bort som vårdval i Region Stockholm https://www.svt.se/nyheter/lokalt/stockholm/beslutet-smartkliniker-tas-bort-som-vardval-i-region-stockholm

Opinion piece by Björn Bragée (published 16 February, ie before the decision was made): ”Regionbeslut slår sönder forskning om ME/CFS” DEBATT: ME-experten Björn Bragée larmar om följderna av stoppad privatvård för kroniskt trötthetssyndrom...

Björn Bragée comments on Facebook: https://www.facebook.com/argadoktorn/ Direct links to the relevant posts:

Bragée Clinics' comments on the decision: Vårdavtalet avvecklas på sikt: Rehab och utredningar pågår som vanligt https://www.bragee.se/namnlos-17

A comment from RME Stockholm, on Facebook. However, they have a long history of being less than transparent in their communications, so personally I'd prefer to get the facts from the primary sources rather than RME's interpretations and speculations. To me, RME's comment below doesn't seem to...

A statement from Region Stockholm. The decision has now been made to terminate the contract for Exhaustion Disorder and Chronic Pain, which includes Bragée ME Center. Förändringar inom vården för smärta, utmattning och ME/CFS...

Thank you so much for this! Now I want to try one too :)

Two articles in the Swedish newspaper DN today, commenting on companies selling expensive gut microbiome self-tests and advice that lack scientific evidence. ME is mentioned. Dyra tester och tveksamma råd: Så tjänar företagen pengar på tarmflora...

Council of Europe, Commissioner of Human rights: 'Nothing to cure: putting an end to so-called “conversion therapies” for LGBTI people' https://www.coe.int/en/web/commissioner/-/nothing-to-cure-putting-an-end-to-so-called-conversion-therapies-for-lgbti-people# Very informative article, worth a...

Opinion piece in the Journal of the Swedish Medical Association. Postcovid: Självläkande komplikation med möjlig bakteriell bakgrund https://lakartidningen.se/opinion/debatt/2023/02/sjalvlakande-komplikation-med-mojlig-bakteriell-bakgrund/ Google Translate, English ("Post-covid: Self-healing...

So far no public comments have been published by Bragée, RME or RME Stockholm. However, @MittEremltage has an informative post about this on their blog today, thank you! Excellent sleuthing, as always :thumbsup: Please click through to the blog for links to source documents etc. Är ME-vården i...

Posts moved from News from Scandinavia Local news from Stockholm, Sweden. According to a news article today, the politicians of Region Stockholm (the local government responsible for healthcare among other things) have decided to terminate the contract for Exhaustion Disorder and Chronic Pain...

Björn and Britt Bragée are publishing an online "pain course" in 7 parts, free to watch on Youtube: https://www.youtube.com/@bjornochbritt (I'm unable to watch this myself at the moment because of PEM, but according to comments on social media it's apparently similar to DNRS?)

Nearly horizontal 95% of the time, sitting maybe 5% of the time? :)

I started doing needlework in bed a couple of months ago, and I've been surprised by how well it has been going :) My hands and arms usually fall asleep very quickly when I'm using my mobile phone or e-reader, but I've actually been able to sew for long-ish stretches of time without...

Could it maybe be a language thing? Here in Sweden the diagnosis is often called 'postviral trötthet', literally 'post-viral tiredness'. (See for example the upcoming webinar with ME specialist Julin and Fedorowski.) I'm not sure if 'postinfektiösa syndrom' is a commonly used umbrella term in...

Fedorowski has had lots of patients with ME over the years, and I've been hearing very good things about him as a clinician from them.

Podcast episode about PEM, well worth a listen :thumbsup: https://natashalipman.substack.com/p/post-exertional-malaise Transcript here: http://natashalipman.com/post-exertional-malaise-podcast-transcript

Läkartidningen/the Journal of the Swedish Medical Association is again organising a webinar for medical professionals on burnout, ME and long covid. (Has been running yearly since 2018, if I remember correctly?) Stressrelaterat utmattningssyndrom, ME/CFS och postcovid Fredag 17 februari 2023...