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100% agree. Which of course diverts attention from 'who would write such a thing about another human being' and judging their personality and the personal qualities/failings the writing itself shows. Currently it is utterly uncalled for picking on the weakest person that can be found - don't...

You mean the tendency to laugh at the person for 'being miserable' when you've played a part in making their life such that anyone would be? I'm puzzled by the weird thing of 'being happy' apparently makes people likeable - it goes against all logic in that people who do what they want and might...

Sounds like the social media equivalent of the person who surrounds themselves with 'yes men' and using the old-worn by BPS tactic of then claiming that anticipatorarily (whatever the word is) blocking anyone who reads science assuming they might say anything other than 'yeah read the abstract...

"Life after ME/CFS" Really? I just can't help thinking when will these people stop and give us a chance of a life or hope of not having bigoted nonsense thrown at us daily. Sounds like they are trying to market the condition as 'lifestyle'. And to pretend it is curable or whatever they've...

This seems a bit out of nowhere - I've heard of the man and the company but not in the context of anything produced being 'nearly there'. Then suddenly something suggesting a regulator is taking the 90% effectiveness claim as correct. What have I missed? does the 'Kine' bit assume they are...

This. I read through @Shadrach Loom 's post with interest, mainly because I decided I couldn't be arsed jumping in until I knew the context. What a strange thing for her to decide to do as a next step after she'd had all of the turmoil from her trans comments. Writing troped bigotry about...

Interesting. It is a good response. Looks like we are getting to that point of 'when a service isn't for ME/CFS at all' but some amorphous PPSS or fatigue etc. In theory this could be seen as 'a clean break' and investigations into funding come up ie (to avoid getting into the separate...

Which = what? Gravy train/confirmation of being at the wheel of all this, or 'claimed eminence'? Potato potato unless you look at the state of where treatment and level of debility for those with ME/CFS is: "Having been involved in working with patients over many years in the development of new...

What is a 'trans-diagnostic fatigue clinic'? I get that you need to market things when it is books etc, and Nietsche's good life sort of gives lessons in this direction, but I say this frankly as a real question: who do you have to be to think you can tell others 'how to live' to the extent of...

Woww. 'they say' interesting turn of phrase I feel indicates certain things (given it is the entire Nice process and all the professionals involved he is effectively 'calling the cat's mother' ...

Indeed - and as the King's response suggested even 'covering themselves' by saying there are 'not for ME/CFS' - well what are they being funded by then and how is that pot of money working. Because I suspect historically they were set up under that 'guise' but expanded to cover 'fatigue' ... why...

I agree. There are some good ones that are medically-based, but perhaps these are identifiable in various ways and need work on to ensure that succession-planning (where often these services have historically changed significantly) improves rather than erodes good aspects. I love an analogy and...

I think that an understanding of this is probably v useful for making smart proposals. I do think that things can move slowly and contracts don't tend to be longer than 3yrs - which might be the amount of time to persuade areas of alternatives. So I think that time to contract is a good way to...

This has now been picked up on ME Association - with a facebook post on it, where COlin Barton has commented if you scroll down it is currently at the bottom of the comments. I don't know whether anyone has been to Hayward's Heath as that post mentions that service not taking in severe ME as...

Is Dr Findley the one who almost joined the ME Association a while back? Was he with this group at that time?

Yes that is a good point that even if he does believe in it helping some that is a world away from dismissing all of these issues and the observable pathways of those it doesn't for all of those reasons. And that is unacceptable. And to layer on the gaslighting and other aspects is...

Indeed. I'd be intrigued to know what is going on with him, as it is one thing many living with hope and deluding themselves for a certain amount of time that they are going to get themselves better by forcing their way through the illness - I'm unaware of anyone who has succeeded longer term...

It shouldn't be anywhere near that directorate. And if it is being forced there that is the very centre of the issue

are we allowed to 'hard copy' the whole thing for posterity or archive/cache this somehow? I think it is an important 'piece of history'. Remembering the sudden change to claims of 'it was never fixed increments' and 'was just rehab' rebrand of GET around the time of the guidelines I'm conscious...

The rest of the post has moved but it had more detail of what it related to as a comment. I meant that 'false belief CBT' or in fact CBT that has any biopsychosocial or tendency to 'stick' personality suggestions on people isn't far from the false memory implanting issue that constituted a...