Search results

They can send it to journalists who contact them. They can send it retrospectively to journalists who don’t contact them especially if the resulting article is deficient

Sounds bloody awful @JohnTheJack ive heard trigeminal neuralgia described as terrible I hope you have/can get some pain relief to at least reduce it virtual hugs

@Hutan on comments about recovery from ME do you mean the majority of people who recover from ME do so within 2 years Rather than the majority of people who have ME for 6months recover within 2 years? recovery best information is 5% according to ME Assn purple book.

I used to hate going into the office when I was in large open plan environments. People would all be sitting at their desks taking part in different teleconferences, all talking at the same time and it was very distracting. The best thing was actually being able to go for a coffee and...

Microwave meal research

Don’t see why they couldn’t have published HTML on the DHSC area of Gov.uk https://www.gov.uk/search/policy-papers-and-consultations?organisations%5B%5D=department-of-health-and-social-care&parent=department-of-health-and-social-care

I think if you’re able to email it would be worth informing AFME and MEA and asking them to take this up with the BSF people.

There’s a thread here discussing issues with Wikipedia content about ME

:wtf:Workability? Well I suppose some managers and occupational psychologists may see employees as a product like clay to be manipulated and moulded. ‘ability to work’ would describe whether someone is able to work or not, even work ability would do it

These people! They’re just projecting their own problems onto us.

Hope you get a way round this @Sarah94 I can’t advise tho it appears to be one of the few advantages of having a fat face.

Behavioural gravy train

Are they suggesting ME should be specifically included on this disability certificate https://www.workandincome.govt.nz/documents/forms/disability-certificate.pdf

Signed:thumbup:

Research may be ignored. But If GPs are still telling people with long covid they have anxiety and or encouraging activity and if people with LC are being seen at fatigue clinics based on CBT approach, which all seems to be the case from tweets I’ve seen the treatment people receive is still...

Cherry juice for insomnia seems to be at the back of my mind

Every time I see this title it makes me think of dog obedience training

Oh goodness @BrightCandle sorry you had to go through that. It’s bad enough just reading the terrible rubbish she puts out as research but at least that’s at arms length. So we can tend to loose sight of the fact that real people like you are still being subjected to this mistreatment

“Encouraging recovery” utterly patronising

Morning is when I feel the best :wtf: Yeah what? do you mean 1 am or 8 am? because that is two completely different situations