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that list of symptoms for CFS is just bizarre frankly.

gosh Adam thats massively helpful, thank you so much! :):hug:

does anyone know how (techinically speaking), i might copy/save that clip that @Adam pwme shared on twitter above, so that i can post it on facebook, please. Goodness there is someone i can tag that i need to hear that statement!

I know you said you tried a few, but that mask looks waaaay too big for you Sarah. much too baggy see my post here Members only - Covid 19 Related Issues - Support and Chat Room | Page 6 | Science for ME (s4me.info)scroll down to post number 111 for mask suggestion for small faces. If you'd...

:rofl::rofl::rofl::rofl::rofl: if only! That just makes me laugh. If anyone can show me where anything has actually changed in terms of treatment of patients, rather than lip service language change, i'll be thrilled to hear it, but the notion that everything has changed is laughable iyam

The trouble is that general populous now use the word 'fatigue' when they want a slightly more serious/impressive/medical sounding word than tired or 'knackered'. In the same way people say 'i have a migraine', when they dont know what a migraine is & think its just a bad headache. Ditto...

i take progesterone only pill (desogesterel), started 10yrs after ME onset to control endometrial hyperplasia. It may no difference to my ME whatsoever, no noticeable difference anyway. Bot of course that not the cmbined pil soo may not be relevant.

i was just picking cheddar as a random, common, general cheese, not as a specific comparator. My question was more about whether i had interpreted correctly that this was an issue related to helpfulness for bone density issues - which i have - ie jarlsberg/high K2 cheeses are better for that...

So if one is at risk from osteoporosis, Jarlsberg is likely to be more useful to you than cheddar in terms of calcium uptake/usefulness to bone density?

not well enough to write a response... so happy @adambeyoncelowe has done it for me :) thank you

havent the strength to say more, but i thought it was a good piece, i didnt cringe once, which is unusual lol. Nicely done Mr Kahn-Harris

I dont know about others but i have pain, that i consider to be part of my ME, so i dont know what a 'fibromyalgia component' means really. So when i took the survey i didnt tick that, perhaps i should have done. The MEA make much of ME & fibro being different, so afaic if i dont have an FM dx...

ugh how awful. i hope its over very soon I had the windows open the other day and i heard a female voice (not my neighbour i dont think, but coming from her garden... say the word "extension". my blood ran cold, am praying like mad that they arent planning one, but i wouldnt be at all surprised...

you certainly put it so well Helly. Am currently in massive tantrum mode since neighbours decided, without notice (despite the fact they know that noise hurts me), to build a 25mtr long brick path requiring repeated use of a soil compacter (large plate that hammers into the ground & makes the...

:rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl:

all of the above

lol its a topic that gets me so riled up i am spending energy i shouldnt on it! but i read the bit i quoted in my original post again.... Just going to edit that statement from my own POV... "I will argue that this disrespect compounds their suffering by requiring a huge amount of energy to...

Hi @kacheston you quoted me but there wasnt any text in the quote box... but i linked through to my post and noticed i was pretty riled up when i wrote it! lol I'm not well enough at the moment to re-engage properly - i have only a vague recollection of the discussion/paper itself & not up to...

i do wish you would but no, surely it doesnt actually hurt that much Sid!? I mean it cant do, I cant feel your pain therefore it cant possibly exist.... surely you are just experiencing some kind of nocebo effect from your strong belief that it hurts. Start smiling more, that'll help. *...

not mine.... this was my experience for both 2nd dose, flu jab & even worse for booster. Which was a room about 4x4m with a group of about 10 people all sitting, some maskless and coughing, in there, chairs touching each other, it was crazy & then each new person was ushered into the cupboard at...