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  1. rvallee

    Uk Dwp get new powers

    What's even more amazing is that it's widely known that this form of excessive means-testing is more wasteful than just not caring too much about fraud because it's not worth it for most people so it happens rarely anyway. Going after the poor while allowing the rich to evade scrutiny says...
  2. rvallee

    The biology of coronavirus COVID-19 - including research and treatments

    The whole "the virus will become mild over time if we allow mass infections has a very strong 'this plan must work because it's the only one we have'" that are common at the end of films and TV but rarely work out in real life. And since this is real life, well... Evolution happens to promote...
  3. rvallee

    BJGP Editorial: Long COVID in children and young people: uncertainty and contradictions by Chew-Graham et al

    Seriously, this is a very sad look into the dysfunction of medicine. No other profession has to cajole their workers to do the basics of their job. I cringe at lines like this every time, same as whenever I see a doctor say "uh, turns out we don't know everything". Absolute cringe. But it's...
  4. rvallee

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Should be, though. I think we're too used to being discriminated, but "healthcare services have been denying a serious condition for decades and coercing patients into harmful mistreatment they have objected to the whole time" is a serious damn news story when it involves millions all over the...
  5. rvallee

    United Kingdom: Science Media Centre (including Fiona Fox)

    That really doesn't sound like what a neutral organization working in objective science reporting should be doing. This is PR. Literally. Just as... uh... Some Sarah something or whatever? Who wrote the PR Reuters piece while working at the SMC. The SMC is a public relations organization, not a...
  6. rvallee

    United Kingdom: Science Media Centre (including Fiona Fox)

    At least we know where he stands. He straddled the line a bit more carefully but here is found deep on the wrong side of things.
  7. rvallee

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Is it safe to assume that Swedish long haulers, and pwME, will be re-classified with this nonsense? Watching medical professionals at work should not carry roughly the same overall look as seeing someone piss drunk making a fool of themselves. And yet here we are. How did this all happen...
  8. rvallee

    United Kingdom: Science Media Centre (including Fiona Fox)

    When this tactic is used, the enemy is always weak and easy to crush, yet powerful enough to affect everything. It would get too political if I expand, but no one who values what's true uses this tactic. It's a tactic for bullies who are willing to abuse their power. It's not expected to make...
  9. rvallee

    News from Japan

  10. rvallee

    Chronic Fatigue Syndrome and Occupational Status: A Retrospective Longitudinal Study, 2021, Chalder et al

    Bothsideism, presenting conflicting accounts and material facts of a story without even attempting to determine which claims are true, is a plague in journalism and it's sad to see that the problem has reached medical publishing. Now there's starting to be a serious problem with the hierarchy...
  11. rvallee

    Aphaeresis/ Apheresis (for removal of microclots)

    Sure, but let's not lose sight that it's very likely that the underlying cause will contradict current theory. Not that this is it, but "contradicts current medical knowledge" is not a compelling argument in research, it's literally the whole point to do research. Frankly if the underlying...
  12. rvallee

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Uhh, didn't bookmark them and my memory isn't good at finding things back. What I remember is a tweet from Sean O'neill, I think one from the Times and Javid also tweeted one, I think it's included in this thread or another. Also at least one from the MEAssociation. And of course other pwME...
  13. rvallee

    United Kingdom: Science Media Centre (including Fiona Fox)

    Always good to remind that when they were asked by a tribunal to prove their allegations, they admitted they had none. The judges scolded them for making "gross exaggerations". Those are the allegations Fox is writing about. Debunked. If the very best argument that can be made out of this is...
  14. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    It would be nice if this were true. This is not how it's used with us, unfortunately. And the immense power imbalance that exists between a patient, especially one struggling with memory, attention and cognition, makes it too easy to be used this way and many do. So many people with ME have been...
  15. rvallee

    Help with Advocating - responding to claims that ME is a psychological illness

    It's frankly hard to understand how that's even an argument. The DSM is wildly known as inaccurate, psychiatric diagnoses are essentially the least reliable thing that exists in all of medicine, they are based on superficial behavior and hefty doses of imagination. It used to contain all sorts...
  16. rvallee

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    This has gotten a bit of attention on twitter, through several tweets from several sources, and you can really see how right the BPS ideologues are about a small, vocal minority, which implies the existence of a large, silent majority. There are many comments, lots of discussion, that talk of...
  17. rvallee

    Unexplained post-acute infection syndromes, 2021, Choutka, Iwasaki, Hornig et al

    It's a legitimate pet peeve of mine as a programmer, frankly an affront on my expertise to have a system that literally both inputs garbage data while also filtering out useful data, it may be the lossiest information system I have ever seen, I would never agree to pretend it's reliable. Health...
  18. rvallee

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    What I read so far is pretty good, scathing, honest. It's easy to imagine how all of this could have fallen flat with the right opposition, but with the added context of Long Covid, this is such a right alignment of circumstances that we may have a chance to actually make progress. So much...
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