Thank you -we did manage to get an MMA test last year ( bloods in August and reported in December) which was not clinically indicative (midrange). She had high levels of B12 ( 1497) in blood last March though not supplementing other than a multi vit powder at 1/4 dose so GP was persuaded to...
Thanks for the quick replies .
I raised this with GP in telephone consult yesterday - not a flicker of response. There is an awful lot of other things going on which may be overwhelming her.
I will collate some info for GP and widen enquiries.
Bells Palsy did pass through my mind.
From the stakeholder questionnaire - zoom meeting next week for discussion with Blake Stevenson who have the Scottish Government commission for engagement
Qiote esasy to respond as other than 1 speciliast nurse we have no " experts". Scottish Good Practice Guide is pretty much out nof date...
Copied from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion
From the stakeholder questionnaire - zoom meeting next week for discussion with Blake Stevenson who have the Scottish Government commission for engagement
Qiote esasy to respond as other than 1...
My daughter has developed a droopy mouth on the left hand side when tired - basically it looks as though she's had a stroke with no control and she drools which is pretty distressing for her. Brain fog is at a new level of " is this my hand and what is my hand" and seems to be very similar to...
Methane seems to be related more to constipation and the methanogenic bacteria may have a more direct impact on the MMC process- slowing down transit. The SIBO test we did was a 3 hour one and checked for both. The 3 hours should allow the lactulose solution transit the full length of the small...
Yes.
It seems to be quite common in 25 - 35s
As is breakthrough bleeding
As is cycles being longer/ shorter than normal for up to 6 months (so far)
ETA this is my eldest daughter's work and friend age group and this came up for discussion via a number of WhatsApp groups and work last week...
I have a friend who has endometriosis.
When she complained of " abnormal" pain for her she was gaslit, dismissed and basically told to just smile and get on with things.
She focused on her job and managed to complete a gruelling microsoft challenge and six sigma training. All the while in...
It can.take years to be diagnosed. Gaslighting is common. Further gynaecology issues are likely to be dismissed.
" illness perceptions " by this point may have to be recorded in French ( sarcasm for expletive language)
This supposes that illness is mild. There is precious little uk paediatric research on anything other than mild.
The focus on being in school demonstrates the lack of knowledge of the illness
School attendance, even supported school attendance , can quickly push into moderate and severe...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.