Search results

Here explicitly advised: Cardiopulmonary Tests Urged for Lasting Fatigue, Dyspnea After COVID-19 https://www.tctmd.com/news/cardiopulmonary-tests-urged-lasting-fatigue-dyspnea-after-covid-19 But for now, guidelines for managing the chronic phase of COVID-19 should include use of CPET, Mancini...

I've seen a few mentions lately that some health insurers and clinics are requiring CPET as a standard assessment for LC, based on its relevance in ME. Nevermind that the logistics of this are absolutely out of whack with reality. At best what this would do is create a logjam of cases that just...

"Stress". I'm sorry but this is not stress in any sense that relates to how it's commonly used. Also it's a common trope that everyone reacts differently to stress so how could there even be a common response? Dogmatic assertions can arbitrarily turn off and on again depending on how convenient...

German politician talking about having ME and LC.

It's a good thing that LC has brought dysautonomia and POTS off the blacklist but it's still almost entirely discussed as an elevated heart rate on standing/sitting up and nothing else. There is just no depth, no useful knowledge, in addition to this simple number. You have to cross that 30 (?)...

I'm not even sure if a single one of the asserted facts has any basis in reality, they are all speculative or lacking any supporting evidence other than other people doing the same thing. One could possibly have some truth to it, but it still would be speculative and premature to claim, in...

Problem is, professional bodies is who will enforce those obligations. So who forces professional bodies to enforce their own obligations? And will they? If the colleges basically just say "nuh uh, we are right, the dirty 'activists' are wrong". Which they are.

It happened a lot to me for a few years. Still does rarely, but for a while it was pretty common, at first especially after meals. Or something similar anyway. I have something similar sometimes when I deep massage (like really knuckle into them) some stiff muscles. Kind of a short wave of...

Some of the same people that did the other "study" asserting LC is a belief. Ranque has been pushing this very hard in France and is (or was) on the government LC workgroup. I have no idea how "anxiety" and "depression", however ill-defined, following the infection could be a predicting factor...

For years the standard for a ME/CFS diagnosis has been 6 months. Now I've noticed lately that the new standard is 2 years, it's by far the most common I see, mostly long haulers reporting what their physician told them last. Or considerably longer than the 6 months that has been insisted to wait...

I wonder how they'd interpret asking the same thing of, say, professional wrestlers, who pretty much bruise their bodies for a living. It's not as if physical violence involved... you know... physical violence. What they'd say about the psychosocial context of, I don't know, machismo or some...

Way to find out that pain is one of the most common medical symptom. Groundbreaking stuff right there. What progress we have made since the 1950's, truly a marvel.

CSS is just a presumed mechanism with no theoretical basis and has never been observed or demonstrated. The questions are typically about illness so all this does is "find" people who ongoing illness, absolutely zero relation to whatever CSS is supposed to be. Literally all they do is ask about...

Almost like it would have required two versions of the guidelines, one that uses painfully legalese language that explicitly spells out every loophole that will be attempted, and another one in plainer language that leaves out those between-the-line details to the full legalese version. It's...

Those differences are trivial and statistically insignificant, there is far too much unreliability and most of that unreliability is in this exact kind of poor judgment where things like domestic violence will make it more likely to prefer one label over another. They still argue it, showing...

Well that's clearly false, they do endorse this and have for decades, when you remove the context. Here they are challenged by the events, that's the only thing that changed. But they do endorse this, in full, based on preconceived theories and use those in standard practice, coercively even...

What does it say about the people harping about bad science that they miss some of the worst science out there? Not much, frankly. It says they are not much good at this. Or strongly suggests that things are far worse than what they recognize. Or both. Although so far I am aware of exactly two...

The issue here is a simple case of "surely the people in charge will do the right thing when the truth comes out". It's truly unbelievable that such a thing could happen, and yet here we are. She can't process that medicine could genuinely screw this up, if only they knew. But this is exactly...

I have seen tons of that in the long haulers sub-reddit. It's not rare. Not one of the most common but it's definitely not rare, probably more common than some of the symptoms that have been acknowledged. One that is too easy to dismiss and never write down, or generally mixed in with "anxiety"...

The vast majority of people have no detectable traces of Coronavirus infection past a few weeks. This is the same problem as usual: ball went behind mommy's back, ball is gone, ball never existed. However they sometimes have detectable antibodies for other viruses, EBV comes up a lot. Actually...