Search results

As a long-term member of the Green Party, it is to my eternal shame that our only MP is a member of the group. I have written to her about it before.

Hi, @Andy - you've included an extra 'f' in the title 'Autonomic dysfunction in post-COVID patients with & witfhout...'

Not sure why I wrote 'over a decade' - it was 30 years before getting ME! BTW I could do other activities quite well - it was just the swimming where I couldn't. Until I took up driving - I found that exhausting too!

occupational rehabilitation Sigh.

I'm so sorry to hear this, @TigerLilea. Likewise for others who are feeling bad post-vaccine,

I didn't see or hear any reference to post-COVID patients having lung problems, whereas most people referring to them mention this as an important symptom.

Merged thread Rock stars split over Covid vaccine The Offspring drummer Pete Parada says he was dropped over vaccine refusal - BBC News The drummer with US rock band The Offspring says he has been dropped from their forthcoming tour after refusing the Covid vaccine for medical reasons. Pete...

I've had my first blood test today when I was actually able to get enough blood! There may have been cat hairs in it though - that's the problem with testing at home... It took ages to get enough from my finger, and I think that as much blood was wasted (wiped away as it got all over my...

True, but some people can't take in enough food to give them adequate intakes of some nutrients, especially as they get older. That said, I couldn't tolerate Co-Enzyme Q10 when I tried it years ago.

Was it Moderna?

I'm very sorry that you have had such a bad response. If only progress hadn't been halted by the psychs, we might know more about ME and who should be vaccinated and who shouldn't. I hope you continue to improve.

I think that my ME is actually auto-immune. That's why I'm reluctant to have the jab. I described my approach here: https://www.s4me.info/threads/covid-19-vaccination-experiences.19645/page-20#post-356226 in case you didn't see it. I hope you continue to improve.

I wasn't able to read the document properly, but there seems to be no reference to auto-immunity or adverse effects. Does anyone know if there are? (I searched the page.) I want to know if there are adverse effects in auto-immune people, as many of us are. (I'm fairly sure that I have had...

A woman from Cheltenham is warning people to be aware of ticks after contracting lyme disease. Vicky Hamlin has become housebound and chronically tired after a tick bite in 2016 gave her the bacterial infection. She used to travel across the world as a travel consultant but is now limited to...

Sorry but I can't read the whole paper, but could someone tell me the length of time for which the patients were followed? I ask because I have found a few things quite effective for a couple of years, and then no more.

I didn't realise this thread was so old - had a hell of job to find it! Has anyone else been asked to continue for a year and/or take blood tests this time? I have. Copied from Covid-19 vaccination experiences | Page 20 | Science for ME (s4me.info) "Being on the testing programme, I was...

Sounds rather like scintillating scotoma, which I get occasionally. It usually lasts 15 minutes, but last time it lasted about one and a half days! There's info on Phoenix Rising about it, for example Does anyone else have visual distortions? | Phoenix Rising ME/CFS Forums

I don't think I'll have the vaccination until I can successfully take a proper COVID antibody blood test. Being on the testing programme, I was about to try to sample my blood the time before last, when the person visiting me stopped me, saying that she didn't have the proper paperwork...

I know it's very late in the day, but I thought it might be helpful if people said what kind of ME they have, if they know or suspect what kind it is. I'm particularly interested in whether it's the auto-immune kind, the kind where they don't seem to catch anything, or whether they do seem to...

Also, Professor Spiegelhalter said at about 13.40 that his chance as a double-vaccinated 67-year-old of dying from COVID was greater that of a 30-year-old unvaccinated person! And that most COVID deaths now were of vaccinated people... The bit about long COVID is at about 15.10. It seems to...