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I have very poor peripheral attention which means I'm always mashing up my hands, and in the garden that means infected cuts which then take ages to heal. I'm also forever taking off heavier gloves because there's some fiddly thing I can't manage with them on, and then of course I either forget...

Or whether any of these abnormalities are in anyway other than merely correlational with the causal pathology of ME/CFS ! Having a reading that is abnormal, i.e 'out of the range' that has previously been determined as 'normal' in a disease free population, is not in itself a measure of...

That really needs some qualification: "Humans have a variable capacity to apprehend the context sensitivity of words and apply such apprehension relative to cultural, social, political, financial and other interests, prejudices and advantages." Yes in most (all ?) human languages context...

I am not a lawyer :) .. but I think the legal position can be summed up fairly simply. In this case the Council got itself confused between treating the two disabled Councillors as a) members of a protected class (disabled people) and b) two people who as members of a protected class have...

I don't know the particular local politics but my guess is that this is a "road to hell/good intentions" kinda thing, where some legal advice has been issued and no one has had the sense to question how that advice relates to the real world. The horror is that anyone in a leadership role would...

Disabled councillors blocked from accessibility vote — because they are disabled This may seem obviously ridiculous, but this argument has been made about patients as study authors. It is pernicious and has to be challenged whenever it rears its septic head...

I was going to add this to the 'Beyond NICE Guidelines' thread but it likely has wider relevance: https://www.theguardian.com/society/2021/jul/14/proposed-reforms-to-nhs-institutionalise-cronyism-claims-labour This seems especially relevant: "Under the complex reforms, more than 200 clinical...

Your post. Yes ;) . One slight disagreement, re: costs. Legislation* provides for those contributing to an Inquiry to be re-imbursed including for legal representation, however costs are at the discretion of the Inquiry panel and you are quite right that there would almost certainly be ongoing...

Main article is paywalled but this abstract is worthy just for the phrase: "synthetic certainties" https://pubmed.ncbi.nlm.nih.gov/34240651/ Travis Proulx, Richard D. Morey First Published July 9, 2021; pp. 671–681 PMID: 34240651 DOI: 10.1177/17456916211017098 Abstract More than 40...

I think the start would be to state precisely what objectives are being sought. From that we get potentially different ways of doing things, but also how those ways may conflict. This is what VES wrote: "A new and robust strategy is required, aimed at addressing the historical damage caused...

The question I think has to be somewhat more complex because what is being asked for is a Public Relations effort and a Public Inquiry, so that the terms of one necessarily define the other and vice versa. We might begin by asking what is the expected outcome of these symbiotic efforts and from...

I agree pretty much with everything in your post excepting about Cochrane - we really need to wait until Hilda Bastian has completed her report - unsurprisingly delayed because of her extremely valuable running commentary on COVID vaccines...

Going for an inquiry would inevitably define any PR strategy. First order of battle would be the garnering of media and political support, the former if achieved having a symbiotic (or parasitic !) influence on further iterations of the strategy. Secondly, if there is any success at the...

Sorry if that seems implied - I was referring to the impact of a Public Inquiry, it would necessarily place parts of the NHS under intense examination and that will likely produce a sense among many in the NHS that "here is yet another attack on us" even though that is not what we would want the...

Edit - just to note that I cross posted with Valerie - the sequence maybe makes this look a bit passive/aggressive or otherwise unfriendly. Absolutely not my intention VES has made many important contributions in her blog and on patient forums in the past, her writing is always clear and well...

Overworked and under resourced path labs relying on technicians given production line schedules providing reports signed off by overwhelmed specialists provided to GPs lacking skill or resources to critically appraise. Check - Repeat.

From: https://www.medicalnewstoday.com/articles/323982#causes "Having an abnormally high level of neutrophils in the blood is known as neutrophilic leukocytosis, also known as neutrophilia. Rises in neutrophil levels usually occur naturally due to infections or injuries. However, neutrophil...

Not forgetting of course that "correlation is not causation". It also might be more accurate to say that: 'a complete blood count can confirm that the body is responding to an apparent infection' - allowing that in the absence of an identified infective agent something other than infection may...

A useful article on the limits of knowledge about Long Covid from Stuart Richie - a psychologist but note he quotes the JoHP special edition on PACE with approval ! https://unherd.com/2021/06/does-long-covid-really-exist/ "And, as we wrote, there’s also a risk of “Long Covid”. We linked to a...

Indeed - GWAS is going to find out if there are identifiable genetic commonalities - or not ! It maybe that there will be a number of niche commonalities that offer different lines of investigation relevant to various sub groups of the ME/CFS population, and if we are very lucky some of those...