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About 1980 I became friendly with a woman whose son was severely autistic. She was quite upfront that it was her fault because she had spent 3 weeks in hospital while having her second child at what she had been told was "a crucial" point in her older son's development.

He says that a trial "requires a comparison with a dummy treatment, so that our expectations, positive or negative, do not influence the results." I thought a control group was needed to separate what would happen over time without the new treatment from the effect of the new treatment...

Interstitial cystitis is classed as a functional neurological disorder by Stone.

Cancer treatments are very harsh, never mind the damage from the disease itself. Basically, they are reframing all the physical symptoms as psychological by calling them "fatigue catastrophizing, focusing on symptoms, perceived problems with activity and depressive symptoms".

There are many of us who became ill after an enteroviral infection. If enteroviruses are not to be considered in a list of things that lead to ME then why should we be looking at long covid when there is no proof? I am too tired to argue with you. I am tired of the long years since CFS was...

I am not talking about doing studies on enteroviruses, it is the fact they are getting written out of history that gets to me. Even without the historical association with enteroviruses and ME they are common but can cause many different problems and have a complicated life cycle. The sad fact...

And ENTEROVIRUSES :banghead::banghead::banghead: How can you trust the work of anyone who has no knowledge of the history of ME? I get angry at these so called scientists who write people like me out of history.

Well that's not going to be the problem it might be as long as you know to avoid both!

Is ACT not used as a name for Acceptance Therapy?

At least they are looking at ME symptoms to try to find a cause, rarer than you would expect.

Crawley and probably others get ethical approval because they have to state the risks of harms to participants. She wrote that they were the effort required to fill in the questionnaires. No wonder she got approval. This is blatant lying. If she does not know of patient's concerns and the mass...

I was told I was developing symptoms of MS because I went to an MS group. This was an extreme example of misunderstanding the arrow of causation because I went to the group because I had neurological symptoms. My ME has always been very neurological with paralysis, episodes of blindness, aphasia...

Female just turned 67, ill for 53 years :). I am still fine, though my ME is so variable maybe I'm not. I had 3 nights of migraines, but then that is not unusual as they come in groups then go for months. When the rest of the family have had flu I've never known if I had it too or if I just felt...

So blood tests are negative and there is no identifiable pathology. All that means is that medicine has not identified a way to recognise the pathology and has not developed a diagnostic test. For one thing, that is not unusual, migraine is still a symptom based diagnosis. Polymyalgia...

Reading the FND website, it has a long (over a page) list of the conditions that are actually FND and apparently, they can all be treated by CBT. It's not just that you could read that into what they say, it is actually stated as a fact. I can't understand why peer reviewers and journal editors...

I got my second dose of pfizer on Tuesday. Strangely, I actually slept better that night than for days :). Still doing fine but the next few days may be the test.

The further down the BPS rabbit hole the less transparent the prose, never mind the science.

The problem is that FND is treated as one disorder which mimics everything you can think of from seizures, IBS to strokes and kidney stones so that it does not matter what your symptoms are, if your arm drops when they examine you that is it.

:(

If men have a higher inflammatory response than women it means that there is not a simple relationship between damage and inflammation so less inflammation does not always mean more healthy tissue. If producing inflammation is a dynamic response, then looking for it in ME may be like looking at...