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Maureen Hanson's team have published MRS data showing low levels of glutathione (a very important antioxidant). Would that suggest that neuroinflammation is a relevant research area & free radicals/oxidate stress?

Can't remember the figure the EU uses for classification as a "rare" disease @Michiel Tack - 0.05%? Numbers I recall quoted for ME/CFS are 0.4%.

Did they use the same "older" ligand in both studies?

Here's a first attempt at a complaint re BBC2 Newsnight program -hope there isn't a limit on the amount of text! I wish to complain about the report on Long covid & ME/CFS - BBC2 Newsnight program on 9th April. The program highlighted that: “a very controversial part of medicine that is...

Thanks for the transcript. Bear in mind that NICE has been hung out to dry on this - as per the House of Commons debate. A Government relies on the electorate and engaging in some nasty campaign against people who are ill (ME/CFS), appears to me to be a dodgy strategy. OK they are, in my...

Bumped into a neighbour, a retired journalist, who worked at the BBC 20 odd years ago. They suggested that you complain directly to the BBC i.e. rather than another media outlet. If you complain to another media outlet then the BBC will simply respond "we have not received any complaints". His...

Extending the period between doses is about getting more people first doses. The UK had 40 million people (50 and above) with their first vaccine by end of March. Giving 20 million people 2 doses would still leave a lot of more vulnerable people (over 50) unvaccinated. So it's a decision based...

Anyone know if there's a transcript of the Newsnight interview? I can re-listen and note the extracts but a transcript might be easier. Thanks.

"hypothyroid" - interesting. I had wondered if it was relevant re ME in the past.

My initial impression was that it was embarrassing i.e. Paul Garner doing dumbbells on his lawn ---- I thought he was deluded. I actually wondered if he'd been ill. I need to watch it properly, it was like one of those programs that make you cringe, so I didn't watch it properly --- why was...

If you hold those views then it may be worth complaining --- but yes if it's contrary to journalist/BBC code then that's relevant. I know someone who's a retired journalist might ask - might not get a reply though!

Interesting. I need to re-watch but I think I recall some comment about "attacks" "militant patients". To me the remarkable thing was the way the BPS shysters managed to deflect the argument. We know now that NICE downgraded the contentious studies [PACE] and we know they wouldn't release the...

Not sure if you guys have seen this yet but check out there's an interesting feature on BBC2 Newsnight now - including Paul Garner! EDIT https://www.bbc.co.uk/iplayer/episode/m000tzkd/newsnight-08042021 around 32 minutes Discussed here...

[possibly misattributing here] I think you've touched on the concern that we're saying no to CBT & GET but not having an alternative - I assume the alternative would be to fund specialist Doctors and support research.

Thanks @Trish I'll go with this* *"NICE has reviewed clinical trials of CBT and graded exercise therapy for ME/CFS, including the government funded £5 million PACE trial, and found all the studies to be of low and very low quality, and not to provide evidence that these treatments are...

Can you be specific i.e. what "facts"? Also, re "how the parliamentary questions system works" what are you thinking of? Thanks

Thanks for the feedback everyone. Here's a redraft*; grateful for your comments. *"The Government funded (£5 million) PACE trial set out to discover whether cognitive behaviour therapy (CBT) and graded exercise therapy (GET]) are safe and effective forms of treatment for myalgic...

Yea refusing to release the data --- until the outcome of the court case (which followed the FOI hearing) --- doesn't really fit with the data being OK/understandable mistake.

This jumps out "by the end, a visit to a witch doctor begins to feel like the most sensible medical intervention in the book". If that's the most these folks can offer, then maybe they should just give up on the "medicine" and move into writing full time - fiction that is.