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    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    It was @JohnTheJack. There is a good blog on “whatever happened to actigraphy?” by @Lucibee: https://lucibee.wordpress.com/2018/05/09/pace-trial-whatever-happened-to-actigraphy/
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    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    He was also chair of the GMC from September 2014 until January 2019 (see https://en.m.wikipedia.org/wiki/Terence_Stephenson and https://www.gmc-uk.org/news/news-archive/new-chair-of-the-general-medical-council). He would also have been member of the Council before he became chair, so he would...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yes. This was my reply to their initial rejection of my complaint, to which the above was their repsonse: “Dear Cat, Thank you for your reply. You may not be surprised to learn that I disagree with your decision. The blog clearly went far beyond one person’s reflections on their individual...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    The BMJ’s editor in chief has now rejected my complaint about PG’s blog: I’m not minded to escalate it to COPE as its website states: “The primary role of the Facilitation and Integrity Subcommittee is not to adjudicate complaints, but instead to facilitate the resolution of disputes in a...
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    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    I’m wondered if this might be the case. Thanks to Dr Strain for admitting he misspoke and apologising. I’ve asked him if he will contact the BBC to correct the record.
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    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Hi Nina, Thanks for your reply and thank you for all the positive work you’ve done. I didn’t mean to be critical of you. Not at all. I just find it frustrating if/when people get the impression that if only people adopt the right approach their ME will improve. I wish I’d been given better...
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    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Disappointing that there is no mention of severe ME/CFS or the fact that many of us don’t improve whatever we do. I also didn’t like “physical v psychiatric” framing: But otherwise quite good. Dr Strain: I’d be interested to know what grant applications he had turned that have now been...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Or as Garner wrote in his June 23 BMJ blog: “Health services are largely institutionally prejudiced against people with chronic fatigue and ME, and in some cases these attitudes are framing the service response to covid-19.” So he recognised the systemic or institutional prejudice – a very...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Don't forget that is was the "banality of evil" tweet that got Mike Godwin interested: The series of tweets Mike Godwin posted after doing his research have got very jumbled up and are now hard to follow on Twitter, but this is the main one: For any newcomers, here's Dave's blog about it...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    NICE looked at outcomes from various non pharmacological trials, with 89% rated very low quality and the rest rate low quality. Did anyone manage to work out which outcomes related to which trials? @Valerie Eliot Smith are you following this thread? Do you think there could be a legal case...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    This reminded me of Clare Gerada on BBC Breakfast: Meanwhile, @Caroline Struthers has uploaded the full interview to YouTube: Remember you can give it a thumbs down.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Good blog from Valerie Eliot Smith on that BMJ blog: https://valerieeliotsmith.com/2021/02/01/professor-garner-the-bmj-and-me-alarming-flip-flop-on-recovery-from-long-covid/ NB Reading Valerie’s blog made me realise I was wrong to say He was actually put in touch touch with the Norway...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    From: https://www.healthcarehubris.com/post/health-politics-in-action-professor-garner-s-change-of-heart-on-long-covid-and-me-cfs: Reading the above made me realise the similarities between what PG wrote and what Fiona Fox wrote in that bizarre article when she was a leading member of the...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Obviously “criticising” should be “criticised”:
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I’ve uploaded a video of the the whole interview here: https://www.dropbox.com/s/21888ojqavgjxcr/Video 28-01-2021, 14 17 39.mov?dl=0 if anyone wants to put it on YouTube and share, please feel free. At the beginning the the interview Naga Munchetty says: “We can speak to two people who...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    People at the Guardian and Observer seem to be finally waking up: Meanwhile, the video tweet has had 35,000 views and over 200,000 impressions.
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