Merged thread
I don't know if this is anything new from earlier challenges:
https://www.healthrising.org/blog/2021/02/19/montreal-inflammation-exertion-chronic-fatigue-syndrome/
There is zero documentation on my medical records that an immune modulator (Imunovir) triggered a MAJOR relapse in 2001 and changed the course of my illness permanently. The Virologist dismissed it as 'unusual'. and that all his pts felt 'less fatigued' from taking it.
Wouldn't that have...
Simpson came to our city in the early 90's, and 'the oils' were prescribed to everyone. I took Efamol for about one year and stopped after it made no difference.
When I relapsed from taking immune modulators, both HHV6 and EBV reactivated. I experienced a terrible 3 months and recovered, but this was when the OI started.
@Mithriel
How many of us know which virus caused our illness? I had a sudden viral onset (extremely elevated anti-thyroid antibodies), but wasn't tested for any viruses that I'm aware of. I had negative PCR testing for various viruses 10 years later- nothing.
I'm dealing with...
@DokaGirl
Many years ago I took in too much salt and retained fluid, but it did make my face look 15 years younger! Everyone commented on how much better I looked.
Have you tried taking in a little more salt?
Salty tricks and tips for dysautonomia:
-drink a mug of warm bouillon in the morning out of a coffee mug -add soy sauce or tamari to everything!
-keep a can of V-8 in your purse or book bag
-try drinking pickle juice, olive juice or doing straight...
My close friend lived in Torrance and had several CFS doctors. He also saw Dr. J Goldstein early in his illness. and described it as a 'wild experience' to say the least. He didn't remember driving home from his appointment.
There wasn't one treatment that improved his health. He tried...
Dysautonomia can be secondary to others diseases which includes ME/CFS. Triggers such as heat, snug clothing, dehydration, over exertion etc can bring on symptoms of dysautonomia. I can check off at least 10 symptoms of dysautonomia easily. Chest discomfort, balance problems, blurred...
I feel dehydrated during PEM but not thirsty, and I normally drink a lot of water. Does that even make sense? I don't have much of an appetite either.
I go for my yearly check-up and don't see my GP for ME/CFS related symptoms anymore. If I develop a new type symptom during my yearly...
Agree. My first experience with PEM (30 years ago) was very different from what I experience now. I was able to do some light exercise at the beginning, but when I went too far I would experience terrible leg fatigue/cramps, one time it lasted 6 months. My legs felt like hot/wet...
This is why we need a definitive and clear understanding/mechanism for the pathophysiology of PEM. The other symptoms won't continue to remain the issue of whether we have ME or CFS.
If post-infectious COVID patients turn out to have the PEM I suffer from, then I will be satisfied that we...
He's on Twitter:
"Finding a link between COVID-19 and subsequent psychiatric symptoms has resulted in renewed interest in the psychiatric sequelae of pandemics. The first such instance was apparently the encephalitis lethargica pandemic which arose around the time of the First World War, moving...
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