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  1. MSEsperanza

    BMJ letter from LongCovid doctors.

    Not so sure about the first one. Is it proven that there is a "biological impairment in energy production"? I think if it was, more clinicians would be interested in biomedical ME research. Yes. The cognitive bahavioral appoach to ME and the trials to defend it have been debunked on a...
  2. MSEsperanza

    BMJ letter from LongCovid doctors.

    I don't understand Twitter but I thought when you've logged out it shouldn't matter whether someone blocked you, i.e. you then should see also the tweets by the person that blocked you? (I don't have an account and can see all Tweets that are linked here.) Hope others will be able to help.
  3. MSEsperanza

    BMJ letter from LongCovid doctors.

    https://twitter.com/RobertHMcMullen/status/1306572870261321734 Excellent question -- I hope I won't miss SW's answer.
  4. MSEsperanza

    BMJ letter from LongCovid doctors.

    (Apologies for just popping in.) https://twitter.com/WesselyS/status/1306568394582491136 "The difference with pacing is that the goal is not living within limits but sooner or later to extend them. But gradual and if possible are key words. And it doesn’t have to be exercise at all. It’s...
  5. MSEsperanza

    A request to those involved in ME research to indicate their position on spinal surgery

    Just a recent example of what I said about journalists in Germany taking the 'stuctural spinal cause of ME' as facts: https://www.berliner-zeitung.de/gesundheit-oekologie/fatigue-cfsme-chronisches-erschoepfungssyndrom-berlin-spandau-wer-pflegt-mein-kind-wenn-ich-nicht-mehr-da-bin-li.102327...
  6. MSEsperanza

    A request to those involved in ME research to indicate their position on spinal surgery

    Thanks again for your iniative, @Jonathan Edwards . I hope at least some people you addressed will react in a helpful way. By this, do you mean medical professionals who take this stuff seriously disregard anatomical and physiological facts they should be aware of? I think it doesn't help to...
  7. MSEsperanza

    A request to those involved in ME research to indicate their position on spinal surgery

    https://twitter.com/StenHelmfrid/status/1298160428921638912
  8. MSEsperanza

    A request to those involved in ME research to indicate their position on spinal surgery

    Thanks for that, @Jonathan Edwards . I think until now, the only 'high-profile' professional doing ME research who spoke out against these irresponsible claims was Todd Davenport, on Twitter some time ago? Perhaps he would endorse your request if someone approached him...
  9. MSEsperanza

    Bristol - New Network - Prof Munafo

    @Graham , I don't want to push you in any way ;-) Just if you are still thinking of sending the letter (and I think it'a also a good letter without picking up any of my suggestions above), this sentence seems not quite correct: "This all stems from media and professional reporting of these...
  10. MSEsperanza

    Bristol - New Network - Prof Munafo

    I missed that: Who is Davey Smith and in which way is he connected to Crawley? And to Munafo? Just happened to have another look at Peter White's book (the write-up of the 2004 conference on strategies to disseminate the BPS model) and saw that Davey Smith contributed a chapter that seems to be...
  11. MSEsperanza

    Peter White (ed.) 2005, Biopsychosocial Medicine: An integrated approach to understanding illness

    Just saw that the book also includes: The biopsychosocial approach: a note of caution (Chapter 5) by George Davey Smith A scan of the book chapter is available open access here: http://www.bristol.ac.uk/media-library/sites/integrative-epidemiology/documents/The biopsychosocial approach - a...
  12. MSEsperanza

    Validation of the Severity of ME/CFS by Other Measures than History: Activity Bracelet, CPET, SF-36. van Campen et al, 2020

    I think that's an important point @Mithriel and @It's M.E. Linda . Not able to explain now in detail, but it certainly is confusing; I'm severely ill, severely disabled ('officialy' acknowledged even incapacitated for work) , but according to the categories of how severe M.E. can get, I think...
  13. MSEsperanza

    The 'Cognitive Behavioural Model' of Chronic Fatigue Syndrome: Critique of a Flawed Model, 2019, Geraghty

    For the sake of completeness -- full article published here: Geraghty, Keith & Jason, Leonard & Sunnquist, Madison & Blease, C. & Tuller, David & Adeniji, Charles. (2019). The 'Cognitive Behavioural Model' of Chronic Fatigue Syndrome: Critique of a Flawed Model. Journal of Health Psychology. 6...
  14. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Very well said, both Jo and rvallee. Edit: Another comment has now been published. :whistle:
  15. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Thank you, Caroline. I missed that. (Which year do we have?) Apologies for any confusion. Yes, see the commentary @Caroline Struthers referenced: And: https://www.jla.nihr.ac.uk/about-the-james-lind-alliance/history.htm
  16. MSEsperanza

    Bristol - New Network - Prof Munafo

    I won't be able to undertake any of the things I proposed in my post above but I read your letter again, @Graham and think it's a good letter that you should send. Some suggestions: - Perhaps add something like "I would be happy if you could have a look at some of the most industrious...
  17. MSEsperanza

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    I assume you are aware that Iain Chalmers is both a co-founder of Cochrane and was the coordinator of the James Lind Initiative which according to Wikipedia, "includes the James Lind Library and the Jams Lind Alliance"? Edited to change Chalmers function to the past tense, see...
  18. MSEsperanza

    Cochrane Exercise Review Withdrawn - Individual Patient Data

    I missed @Caroline Struthers' comment from 2018 and Larun's response to that protocol. Seems that a link hasn't been posted yet? https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD011040.pub2/read-comments L. Larun: Also, someone reminded me of the remarkable fact that the...
  19. MSEsperanza

    Peter White (ed.) 2005, Biopsychosocial Medicine: An integrated approach to understanding illness

    Peter White (ed.) 2005: Biopsychosocial Medicine, An integrated approach to understanding illness. Oxford University Press https://global.oup.com/academic/product/biopsychosocial-medicine-9780198530343?cc=de&lang=en&# Links to this conference and book have been posted on different threads...
  20. MSEsperanza

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://twitter.com/trishgreenhalgh/status/1293148324107821058 https://twitter.com/SithElephant/status/1293151894282657792 https://twitter.com/trishgreenhalgh/status/1293153400843112449
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