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No. At least that's not my understanding. The philosophical approach that's developed about illness since the 80s possibly. Even that's been driven more by the attitudes & needs & greed of insurance companies, governments in trying to limit benefits and those eager to find a niche and make a...

From my own experience of brief bouts of childhood illness where I would be left too weak to stand and from playing seasonal sports where you have to train up at the start of the season I completely agree with the points you made. The deconditioning argument never stacked up. This situation...

I expect you're right and more letters like these will pop up. The BPS brigade will want GET centres to remain open. There may well be patients who do not have ME who respond to treatment so let them but with strongly enforced provisos - Safety first - according to patients GET harms more...

In addition to actively encouraging and giving governments and insurance companies excuses to use to deny much needed financial and practical assistance.

I didn't read it that way at all! :hug: I probably could have been much clearer in what I was trying to get at.

Yep I understand what you mean @Kitty, but if we compared hundreds of answers of mild, moderate, severe, newly ill, 5 years in, 25 years in and diced and sliced the data with say the results of Lenny Jason's previous work on PEM would it further our overall understanding. Is it something that...

Sure, we know the answers in general terms. They've been known, and sadly ignored, for decades. What I'm getting at is if we could somehow develop a template of PEM, its symptoms, it's triggers etc. ,- the negatives if you like and overlay that with the mitigating factors - as the questions...

They certainly lack humility and may well lack curiosity but I don't for one second believe these guys are stupid. In the early days, sure, they would be more likely to see a certain type of patient. Since then they have flatly refused to.listen to other doctors with different patient groups...

I suspect this was deliberate. Anything they've said in the subject has always been to either deflect hard questions & criticism or simply to muddy the waters. Wessely, Sharpe, Chalder the whole cabal have been in the game long enough and have had the platform to clarify what exactly they are...

There is some truth here. Years ago my ME consultant, who had contact with Wessely, actually said to me that when he heard Wessely speak about his ME patients they sounded very different to the ME patients he sees. Of course part of that difference may well be down to the rubbish...

Looking at the references throughout I think this is a marvellous example of GIGO. The opinions of his mentors are largely unverifiable in a field that, even today, doesn't come close to conforming to standard best practice in other fields of medicine. From the first paragraph quoted by...

Maybe if we knock some ideas around ourselves & see if someone like Lenny Jason might take it further - his team have done the best work so far. I wonder if it would be worth listing - 1 what specifically helps reduce the risk or severity of PEM - beyond general pacing 2 what, if anything...

Anything that might eventually give even a tiny improvement is worth considering. However, something they don't seem to acknowledge is that it can take a very long time for a very tiny, if worthwhile, improvement. That tiny improvement can be completely wiped out by all sorts of things...

Of course the irony being it favours excessive treatment by those claiming ME patients shouldn't undergo "excessive" testing to find a potentially treatable cause for their symptoms because the testing harms patients by reinforcing their belief that they are ill.

Jo Daniels? Is that Jo "Shopping Bags" Daniels? I wonder if it's symbolic that the person in the photo is using a shopping trolley?

I must admit I find the concept of needing to have "heroes" or even the concept of "evidence based medicine" a bit daft. I am talking about the concept here - not people who agree with it & not the author. There have been people in my life I have had a great deal of respect for. This shouldn't...

Not only is this drivel, it's derivative drivel.

To be fair - not all of them. I have had 2 really good ones. They explained to me the issues with the "normal" range. A third realizing I had a diagnosis of ME suggested a trial of T3 to see if that made any difference (in my case it made it worse). The snag is many of them are working under...

Who they hell is he to think he knows better than experienced medical specialists? These tin pot dictators need oversight & reining in when their power goes to their head!

Yep I saw that. And despaired. If ever there was a definition of cart before the horse this would be it. Endocrinologists should be completely up in arms about this. It's a massive empire building exercise.