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https://www.healthrising.org/blog/2019/04/15/nih-chronic-fatigue-lipkin-davis-prusty-oh/ The NIH ME/CFS Conference II: Lipkin’s Possibilities, Prusty’s Big Idea, Oh’s Search and Ron Davis on ALWAYS Moving Forward by Cort Johnson. Section about Dr Oh's talk:

Isn't Lipkin or someone working with Lipkin working on mapping the microbiota to such an extent that it would be possible to tweak FMT to give just the right amount and sort of bacteria a patient would need for M.E.?

M.E. is to my best knowledge often associated with leaky gut. Which is why there's such an emphasis on the gut. But much more promising and measured jak-inhibitors are already in the final stages of testing(upaciditinib, filgotinib). And if I recall correctly, trials on m.e. are already underway...

I think this is one of the two jak-inhibitors that's supposed to be tested for M.E., filgotinib the other.

Provided they get the funding they needed.

I'm not self-treating but I do get a dose of hydroxocobalamin twice a week IM and it does help with pain and fatigue a bit. It's in no way a miracle-solution though.

That would be better than just withdrawing, yes. Have it on public record once more that those studies are a pile of crap.

Doesn't matter if it is, I'm proud of the reactions to all the ignorant tweets being put out there lately mainly by psychologists or people with a dog in this fight in another way. There's no namecalling, threats or whatever, comments are just being relayed with simple facts.

Some already did.

Isn't the Reuters thing a SMC release? Didn't the SMC lose a lot of credit over the past year(s)?

Wanger, ghegheghe.

Does this make us valuable to the cartels? I'm boarding up my house just in case.

There is evidence of in-vitro activity of samento and banderol I think. As to clinical evidence I don't know. Then you have Bühner's protocol, who does seem or atleast claim to use documented treatments with herbs, but the finer details of that and the efficacy-rate of that eludes me.

Like fatigue I think it can be a symptom of many things. Rough times or physical failings. Me, I get depressed when I don't stick to my diet which probably has to do with my leaky gut. Being on anti-depressants doesn't help that, staying away from certain foods(especially sugar) does. Drug...

Actually looks pretty good I think?

Does seem like she's doing her best and it would be good for our organisations to build a good rapport with her.

To be honest, i'm not even offended by that joke.

Think you got a point there. Destroying PACE is very positive for us and very negative for him. That's where we once again are at a stand-off. The one person's positive is the other's negative.

It so happens that defending patients and attacking that piece of garbage from 2011 happen to coincide.

I honestly would just nail him on that. Such and such have given me GET and I got worse, are they to blame or is the therapy itself to blame?