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Well done @Trish!

Clare Gerada: Errrr...hello? Exactly who do you think takes full accountability when things go wrong? The doctor who blithely goes on his/her way earning a pretty good living and giving patients dodgy advice, while hiding behind the skirts of NICE & the likes of Cochrane Or the patient...

I'm not saying catastrophization isn't a disabling and distressing issue, or trying to diminish the suffering it causes. However, from an ME patient point of view (with possible fibro overlap), I am wary of the idea of pacing and forward planning of activities being put down to...

The other thing that strikes me - where does forward planning end and catastrophization begin. If you know you have a task ahead that will require you to dig deep to accomplish it, something you have no hope of doing on a less than a very good day, isn't it going to be on your mind? Is it not...

I think they need to learn that there is no way they can even come close to imagining a life of pain, unless they actually experience a life of pain. They need to stop being so flaming arrogant! By all means they may know more about the biology and disease processes than the patient, but until...

It strikes me that all this provides the perfect means of dismissing / minimising / ignoring any complaints made by those suffering with LTC about service quality and delivery. If you're not happy, no matter how you've been treated (or mistreated) then that's your faulty perspective. You are...

I notice the description for the book co authored with Mary Burgess Overcoming Chronic Fatigue: A Books on Prescription Title (Overcoming Books) Kindle Edition Contains the following (Bolding mine) Wonder if it's worth raising this with the advertising standards authority?

Even worse, then. I've only heard of Liv Landmark through patient forums an and so was trying to be fair, give her some benefit of the doubt. Cynical attempt to exploit the sick for one's own personal gain. Lovely! Unfortunately, there's a lot of that about.

As far as I know.... There are two categories - contribution based and income related. If you're in the contribution based group then these restrictions don't apply. However, as you've not been in the country you won't have been making NI (national insurance) contributions, so you would fall...

This is true for many and at the other end of the spectrum some of us are here only at our best - we feel like company, but are too ill to cope with actually meeting people. Imagine how many conversations a "normal" healthy person has in a day. From simply thanking their barista to full on...

A trick that they've clearly learned from.the BPSers. The word recovery for example. This isn't medicine as you know it, we've stepped "through the looking glass"...

Wow! Well done! :thumbup:

I don't know the details of your migraines @Squeezy. In my own case, even after the migraine is over the effects still linger for a day or so. I will feel drained, washed out. That was true even before ME struck. According to the neurologist I saw, that was fairly typical. Basically...

I'm sorry @Wonko :hug:. Reading this kind of stuff is like being kicked in the teeth all over again.

I think the practicalities of such a restricted life can only have a negative impact on digestion. As @Trish says there's the difficulties in preparing fresh, healthy meals, the difficulties some have actually eating, the difficulties many of us have with digestion (which may, or may not be part...

I wish that I could go back in time and gather up all that money I wasted and give it to someone like the ME Biobank.

I believe this refers to or is connected with the letter dispensing with Suzy Chapman 's services to the Forward ME Group. If I am right then post#21 in this thread: https://s4me.info/threads/forward-me-group-minutes-1st-may-2018.4384/page-2#post-78660

I have asked, a couple of times I think, for feedback and opinion from people who tried, or considered something. It's been very useful. As long as the question isn't seeking medical advice and the responses are clearly anecdotal and avoid giving specific medical advice, it is fine. As far as...

Is it worth reiterating that some lecturers or universities in the US are now using a famous piece of British research to demonstrate how such research should not be done?

Right. Because the conflicts of interest & paychecks that came from DWP and insurers makes no difference? The research culture where it's okay to mark your own homework, yet still claim to be independent makes no difference? The culture where people are afraid to speak out, or even simply...