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@Tilly , have you seen @Kalliope's posts on a project on adapted education for children and adolescents with ME in Norway? It's in Norwegian, but perhaps it could help to demonstrate that there are some sensible people who take ME and the problems with regard to school attendance seriously and...

Thank you @Grigor, Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and @dave30th for your advocacy work. I was not able to watch the video but copied the automatically generated transcript. The transcript didn't capture the posed questions, so I added a line "[Question]" where I assumed...

I think that is a common error: To think that when there is no" biological" explanation, then there is only a psychological explanation left - or vice versa: A psychological explanation could be disproven by a biological one (like POTS). In my view an anxiety diagnose has to be made based on...

I think that is a common error: To think that when there is no" biological" explanation, then there is only a psychological explanation left - or vice versa: A psychological explanation could be disproven by a biological one (like POTS). In my view an anxiety diagnose has to be made based on...

BBC Wales are planning a story on ME: WAMES homepage: http://wames.org.uk/cms-english/

David F Marks: https://davidfmarks.com/2018/09/21/psychology-in-crisis/

Would it be worthwhile to investigate the immunological mechanisms linked to interferon-ß induced flu-like symptoms in pwMS then? I think a majority of pwME has flu-like symptoms, at least during PEM phases, and these seem to me to be more specific than "fatigue". [Edited to add: I realize that...

I don't know if these are the same interferon injections that people with MS get. PwMS report flu-like symptoms for 12-24h after their interferon injection, but no prolonged fatigue after the flu symptoms are gone.

It's fine to see basic research on fatigue. In my opinion, all research on fatigue should specify which type(s) of fatigue it is investigating, though: cognitive, "mental", muscle, motor; fatigue/ fatiguability / fatigue as part of PEM. I think, this should be the premise of comparisons between...

By the way, @Graham , my "like" referred to your self-irony and the hope you expressed concerning your brain cells, but was not meant to endorse your factual statement about the alleged quality of your letter writing or other alleged skills. [I don't think your letter writing skills were...

https://wonkhe.com/blogs/a-manifesto-for-reproducible-science/#comment-25008 :)

I just would like to add some thoughts about the "Reproducibility Network" announced by Munafò, and his "manifesto for reproducible science". I find the University of Bristol's press release announcing the network very strange: It's almost content-free. The only content and names referred to...

Thank you for reading and assessing the Munafó manifesto, @Jonathan Edwards .

I meant Munafo's network. Confounded his network and the BRTC after reading (not properly) @Graham's post: https://www.s4me.info/threads/bristol-new-network-prof-munafo.5802/#post-105367 and seeing Munafo's name also mentioned in this thread. Now I understand that the only connection between...

Seems to be a similiar manifesto. [Edit: It's an artcile by Munafò on the manifesto and the new network] I referred to this one [the manifesto published on Nature (January 2017)]: https://www.nature.com/articles/s41562-016-0021. It's linked on the University of Bristol website...

Apologies, I meant: http://www.bristol.ac.uk/news/2018/september/reproducibility-network-.html

Apologies for just popping in. I am not able to read the manifesto linked on the University of Bristol website announcing a "Reproducibility Network that aims to improve the rigour and reliability of UK-led scientific research". Co-authors are Marcus Munafò and Dorothy Bishop, among others. At...

Thank you for taking action, @Graham . Have you seen the linked manifesto? https://www.nature.com/articles/s41562-016-0021 Only was able to have a first glance at Munafo's manifesto -- it seems to make some reasonable points. So perhaps it could be worth the task to show in which points a...

includes a very unhelpful quote from CDC's E. Unger: would be good to have the fullt text of her e-mail. more on the series on this thread: https://www.s4me.info/threads/dutch-journalist-asks-about-pwmes-objection-to-cbt-get.5521/ (my last last post on this topic while having a forum break...