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My hair has been falling out over the past few years.... i think it’s TE loss rather than anything else. So far, I’ve been able to cover up the thinning by getting more of a fringe. I don’t know if it’s hormones or ME... I’ve tried various supplement and decided that actually nothing makes much...

I think the woman on the left has got vinaigrette....hence he’s scoffing at her for not preferring mayo...

My dad has a myositis... but they don’t know more than that.

@B_V does this mean the specialist thinks you may have some as yet unknown type of muscular dystrophy? My father had a muscle biopsy last year - no diagnosis forthcoming but now they are sequencing his genome.... He doesn’t have the fatigue - and I don’t have the muscle wasting , but I do find...

https://www.whatsuptv.co.uk/single-post/2018/06/20/ME-Funding-Statistics Great to see this post too...

Huge thanks @Dx Revision Watch for all you have done on this. What you have achieved is so important.....

I get them very occasionally - I can feel it coming on so usually I can sit down quietly and it only lasts a few minutes. My heart rate doubles to around 160bpm, and to look at me, you can actually see my body shaking. For me, it’s a sign I’ve overdone things. So my only advice is to try to cut...

I think this so unlikely that you can safely dismiss this rumor as rubbish.....

Is it my imagination or does he actually look like he’s still sick? To me, he’s got that exhausted/no energy look about his eyes.....

I do appreciate your point @large donner about the danger of having ‘coping’ assessed without the patient being aware, but I think that it needs to be appreciated that any healthcare system must monitor a patient’s progress and be vigilant for signs of deterioration, adverse effects of...

They’re in the Bay of Plenty. I’ve chosen not to join....like you, I have reservations about some of their information. They are a charity. Recently renamed chronic complex illness support - used to be ME/CFS Bay of Plenty. It makes me wary when the employee has ‘recovered’..... It would be my...

It seems to me that what has disappeared is the notion that feeling really sad is not necessarily abnormal, and does not necessarily equal depression. I think anti-depressants are probably vastly over-prescribed. I know I have been prescribed them several times. I haven’t ever taken them - it...

Interesting thread! I don’t get the shakes very often but I do get the ‘fizzing’ feeling - for me it will be in specific muscles when I’ve overdone their use. The fizzy feeling lasts from several hours to a day or two depending on how much I’ve pushed them... it’s usually accompanied by getting...

Unrest is storming ahead of the others currently- over 1,200 votes, with second place having 150.

I honestly think MS is incapable of acknowledging the flaws in the trial. It’s all embedded in his brain with big ‘ticks’ and now he can’t actually engage in any critical reflection or his head might explode. He feels persecuted and victimized and that is now his default position.

For me, the term ‘evil’ assumes malevolence. I think it’s entirely possible to do something that is very harmful without there being malevolent intent. I also think that it is possible to stick to a viewpoint which is harmful without malevolent intent. The interesting question is, for me, at...

I think it is important that we all do what we feel is right as individuals. I will support a group action if that fits with what I think, but I don’t like emotional arguments being used to try to make me feel that I’m somehow wrong or not supportive of other people if I don’t want to support...

I don’t see how it can be wise to give multiple vaccinations at the same time.. I’m not anti-vaccination but if you are asking for an immune response, surely it has to be sensible to be cautious - and that means one thing at a time. That’s my beef with the MMR.. Do we know that vaccinations at...

Doctors kill far more patients than the other way around - and I’m sure that is true if one crunched the numbers to get to be able to make a direct comparison.... obviously it’s just that doctors are more important than patients.

Reading this abstract just made me say ‘oh, f*** off’. I’d like to give them the experience and then see how keen they would be to write such offensive twaddle.