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Thanks @Mij :thumbup:. It sounds like something I'd like to try, but it's probably best if I steer clear because of thyroid problems. Back to the drawing board.

Sorry @Sarah. I think I could have been clearer myself. I understood you were showing us what their document says in support of their claims. Very interesting document. I didn't intend to shoot the messenger. :hug:

I am looking at various things I might like to try and wondering about acetyl l carnitine. Do you have any experience with it, bad as well as good? What dose? What symptoms it helped with? Also I have read that those with an underactive thyroid should avoid it. I would be very grateful for...

I am being stupid here? How do factory closure studies solve for reverse causality when by definition all of those workers were well enough to being in full time employment. There is a massive assumption that what's beneficial for the healthy, is beneficial for the ill. So if people who...

That makes for interesting reading @Sarah. Could they really be using data gathered about reasonably healthy people, who are well enough to be in employment, suddenly losing their jobs and then simplistically applying that to people who are not at work because they are too ill? I guess given...

Wow! So, in the meantime, Prof Sharpe, you could stop doing your level best to stifle biomed research and encouraging the view that treatments, specifically modified for ME patients and usually used as a bolt on therapy in addition to drugs for other illnesses, can magically improve the lot of...

Something else to check out now I think about it: certain medications, particularly those containing oestrogen can increase the need for thyroid meds a bit. LDN can reduce the need in auto-thyroiditis. I would also have a look at any other meds who mention thyroid contraindications even if...

@dave30th is already providing great value for money. Well worth every penny! :thumbup:

It's very easy to lose track and forget about managing thyroid issues when you have ME. I was undermedicated for years and was just told my results were fine & within the normal range. Eventually, under the care of a good endocrinologist we discovered that "normal" or what feels right for me...

They say: Yet the project runs over 6 weeks which is no time at all. The difference in results had I participated in something like this in a good phase, especially early on, compared with a bad phase would be vast. We all know that even within phases, within days and even hours, there are...

Sure, for now but the discussion is out there. You never know who will retweet. We don't know for sure who is reading it. It's not the storm that will bring the ediface down, but it is more water damage to the foundations.

So, first we were so scary SW moved to a war zone to get away. Now, he's voluntarily engaging on twitter. I think it's a good sign. This twitter feed will do nothing to change the stance of the BPSers, but is very important for all the others without a dog in the race who read it. As others...

....and he does so deliberately.

It occurs to me that, for those whose initial illness was a slow and steady progression where they tried to maintain their workloads, there may be a risk of skewing results in questionnaires towards the Type A overworker stereotype. As I became increasingly ill, with nothing apparently wrong, I...

What the heck is one of those? Is this my dog's new job title?

Aha the penny drops: I thought you were defending them!o_O

Like you I wouldn't hold my breath @Andy ! An apology, or even just an acknowledgement, would be very welcome. For me, the time for that to have most effect is long past - if they had done that and then signed that open letter for the retraction I would have felt that maybe they were mending...

Congratulations @andypants! Great news! One thing at a time. One job at a time and allow yourself breaks between jobs even though you won't be doing the work yourself. In my view, its better if you take it slow as it gives you time to work out how best you'll use the space. Which rooms get...

That doesn't even begin to start to make up for all the other stuff they've also been involved with. Including PACE.

I couldn't agree more. I can see this could be a positive initiative, but given AfME's past form this could easily go very badly wrong on a rather large scale. The fact they have never really addressed their role in PACE, their involvement with Crawley, close ties with Colin Barton leaves me...