These minutes have left me confused as to the nature of Forward ME as an organisation. From its website one would assume that it is a normal, though perhaps poorly constituted, members organisation. It gives the appearance of conducting regular meetings for which minutes duly appear.
The...
@Russell Fleming @Action for M.E.
I am not pressing you yet to reply to my earlier question. I realise that a position on the horns of a dilemma is not a comfortable one.
The above posts have raised another matter which requires the attention of your organisations as members of Forward-ME...
Feel free to adopt the Gavin Williamson approach and tell me to shut up and go away, if you wish.
By "signalling"I had understood you to mean something much narrower than that. My misunderstanding.
When looking through the Wessely 1993 paper Neuropsychiatry of CFS I came across the remark...
There is a fundamental problem in that minutes may be both true and untrue. They may be true in that they record accurately the business conducted at the meeting. They may be untrue in that what was said at the meeting was inaccurate, or at least inadequate.
It is a great relief to know that...
@Jonathan Edwards
I was thinking about your faulty signalling hypothesis.
I think the symptoms might be analysed as:
1) symptoms that occur all the time eg parasthesiae or pain.
2) symptoms that occur upon intended to do something eg the feeling that the battery is almost flat and will not...
That idea is interesting but I cannot understand how faulty signalling can be the primary problem in the fluctuating, regularly relapsing and remitting, stage that many experience. Does there not need to be something even more fundamental to cause the fluctuations in the signalling?
Is it known what sort of patients are to be tested? Given the smallish numbers involved it would be interesting, whatever the results, if patients from opposite ends of the spectrum could be identified, say one group with acute onset from an identified virus, and one group of idiopathic slow...
Judging by those minutes it is not surprising that nothing much useful ever seems to happen. I don't think I have ever seen minutes which record that questions need to be asked, without specifying of whom they need to be asked, who will be responsible for asking them, and whether they will be...
Isn't there something wrong about the symbolism of the apple? Once people have eaten of the tree of knowledge, should they not be cast out of the paradise which is their CFS clinic?
The trouble with organisations like the Revolutionary Communist Party is that you never know who are the double agents, who the agents provocateurs, and who just ordinary members who actually believe.
As Spike Milligan said, I think:
The boy stood on the burning deck,
Whence all but he had fled..
TWIT.
Edit This was intended to follow the post of Strategist, not Dave.
He published a great deal more than that. A 1993 paper of his which I am looking at lists 8 more, not including the one above.
Sorry for any confusion about the names. I was assuming that we all knew who we were talking about.
Sharpe seems to have relied on
Sensky T 1990 Patients reactions to illness. Br Med J 300:622-623
but I rather doubt that it will provide the answers you seek.
This made me recall something in Sharpe's 1993 paper.
"Inactivity produces a range of physical and mental changes similar to those suffered by people with CFS. These include muscle wasting, changes in the cardiovascular response to exertion, depressed mood, postural hypotension and impaired...
I wish that I knew exactly what were the qualifications of Wessely, David, Butler and Chalder in 1989. It has always seemed to me that they were all much too junior and with too little experience to have such an influence. There views at the time seemed at variance with reality, and I think that...
To say that it is not a curious question possibly appears to suggest that the questioner already knows the answer, and that by answering in that manner he does not think it necessary to correct any false impression.
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