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8-9 hours usually. 9-11 hours in a crash.

You may be correct that some have changed their views. I hope you are correct. These 1999 ME/CFS documents were the most current I could locate on the California Medical Board website. I wanted to document this before contacting them. Is the Calfornia Medical Board simply not aware that things...

I think you're onto something. :) I searched the Medical Board of California website, and found surprisingly little on ME/CFS. Apparently, they had a presentation on the topic in 2012, but there's no actually record of what was presented. The only written info is in an "Action Report" pdf from...

Response from the California Department of Public Health yesterday, after more than a month of emails and phone calls. Basically, "it's not our job, please contact another government agency". If the CDC had sent me to the correct state department, it would have saved a lot of time. :rofl...

Elizabeth Unger MD PhD. "Chief of the Chronic Viral Disease Branch (CVDB), Division of High-Consequence Pathogens and Pathology, National Center for Emerging and Zoonotic Infectious Diseases at the Centers for Disease Control & Prevention." I saw Dr. Unger at the 2017 Invest in ME conference in...

As a temporary workaround, if you are using a VPN, try setting it to the United States. I notice if I set my VPN to the UK, then the domain virology.ws isn't resolving. Update: Setting my VPN service to the US or UK doesn't work anymore. But if I set it to Australia, virology.ws resolves. For...

Thanks for the reminder, @Dolphin :)

I've attached a PDF of the NY State Health Commissioner letter from last May (it's the second half of the letter). Cort also wrote an article about it: https://www.healthrising.org/forums/threads/new-york-tells-its-doctors-to-watch-out-for-chronic-fatigue-syndrome-me-cfs.5417/ PS: I finally...

Here's the email response I got from SendGrid after reporting the phishing email. SendGrid is where the emails originated from. SendGrid closed the ticket, so I don't expect to hear further from them on this.

If you look at the email header, the email actually originated from sendgrid.net. SendGrid doesn't have the best reputation for cracking down on spammers and phishing. However, you can report these emails. The following link has instructions on how to report malicious emails to SendGrid...

New related thread. Ophthalmic correlates of Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) https://www.s4me.info/threads/ophthalmic-correlates-of-myalgic-encephalomyelitis-me-chronic-fatigue-syndrome-cfs.2603/

Very much enjoying skimming this. I've been unable to find an opthamologist in-network with any ME/CFS experience. All eye tests so far have been normal. But this document might help validate my symptoms. Or at least better describe them. Looking through the eye symptoms, I've had many for...

Looks like I forgot to include another reply I got a while back from the CDC, so I'll post it now. Note that there is a "cfs @ cdc.gov" email address. Shhhh. :jawdrop: The CDC certainly is taking their time preparing the new materials. They've gotten good input from what I've seen. Hope they...

If I knew such a person, I would contact them. Edit: Right now, I'm wondering whether it's worth using more of my limited energy on this sisyphean task at the state level. Or is it better to wait for the new CDC materials, which should come out soon?

Just an update on my complaint filed with the California Department of Public Health (CDPH) regarding Kaiser Permanente continuing to recommend GET for ME/CFS. It's been a month of CDPH saying "Someone will reply to you within 2 business days." When I don't get a reply as promised, I contact...

I think these are the existing threads. https://www.s4me.info/threads/proposed-2019-presidential-budget-for-cdc-involves-zeroing-of-cfs-program.2477/ https://www.s4me.info/threads/us-cuts-to-prevention-and-public-health-fund-puts-cdc-programs-at-risk.2390/

Medicine: You are healthy. All your tests are normal. We don't know why you feel sick. There is nothing we can do for you. Psychiatry: We know exactly what is wrong with you. Fortunately, it's just a matter of finding the right combination of meds and you will be fine. We promise.

Article about analyzing research databases of viral genomic sequences to find viruses that produce peptides similar to human hormones and regulatory proteins. They conclude some of these viruses could be a factor not only in diabetes, but metabolic disease, autoimmune disease, and cancer...