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Dr Sivan has responded again. Dear Jonathan Thanks, great points, agree with most of them. I am conscious of colleagues' inboxes, so I will keep this brief and will not send further emails. I have added comments in blue (bold) text below yours: Dear Manoj, As someone trained in rheumatology...

I chanced upon a paper from 2005 that I thought was interesting. It documents physios trying to validate make believe symptoms and signs of CCI using a 'Delphi' technique - ask the 'experts'. Clearly the idea of fatigue being related to 'CCI' has grown as a meme over a period of twenty years...

If this is part of an MEA funded project I think it is a bit problematic that Russell Fleming should be an author on a publication. Sonya Chowdhury has been a co-author on DecodeME publications but I think the situation is significantly different there.

As I understand it the Chinese scientists were hired by US and UK organisations to do their dirty work away from scrutiny. The thread post says video not available. Maybe I am outside your zone of scrutiny @Chandelier ! PS It says my YouTube history is off. Whatever that means.

As long as that wasn't in Spanish, where it is spelt bum, as in Un Bum Económico.

They conveniently leave out that Covid19 was probably man made, rather than 'evolved'.

Dr. Raj also serves as a Medical Advisor to many POTS patient groups, including POTS UK, and Dysautonomia International, and he is a part of the EDS Community Coalition Working Group. Leading in what sense? Fingers in pies?

I have replied to Manoj Sivan: He had copied in all the other people who gt a cc so I did as well. Dear Manoj, As someone trained in rheumatology and rehabilitation, I am quite certain rehabilitation is not the right approach for ME/CFS. Moreover, the patients are sure they do not want...

Is that safe from patients and from professors and colleagues who write letters?

Presumably the 14th got stuck in the sleeve of the cardigan in the washing machine?

This is a very neat way of putting it.

Unhelpful. Why not just admit that we don't have reliable data?

Lying in bed when ill for other reasons does appear to be a clot risk but for those with long term disabilities clots seem not to be a major issue - as indicated for severe ME/CFS. I think the evidence is that the risk of clotting just from immobility is low.

Oh dear. I wrote this so long ago I can't remember if there was more.

You'd better read the paper. That's what it said.

I have had my head full trying to get the letter off and also writing a brilliant new theory of water on the brain this week. Tomorrow I hope to have time to write back to Dr Sivan. I shall make it clear that the ME/CFS community and I do not see rehabilitation as relevant to the illness.

So the usual woo?

I seem to remember that Lord Voldemort managed it.

I doubt we can get involved. I am too old, for a start! I can write letters but...

I had not heard of Bridges self-management. I worry that all the politically correct talk is drowning out any reliable evidence related content.