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What is the charge, your honour? Misconduct in Public Office?

I think this is a mischaracterisation. Remember that even a certain S Wessely tried to find abnormalities in lymphocytes and HLA (he may even have found a genuine genetic signal twenty five years before DecodeME) before giving up and going for CBT. As soon as doctors find a simple solution with...

Whatever that might mean.

I guess that my disappointment today arose from a single pair of words in the middle of a DHSC slide. We were told a lot about the conditions a service had to meet but remarkably little about what professionals would deliver it or what they would actually do. But right in the middle of the...

I don't think there is such a thing.

In the past my understanding has been that AfME get government funding. If that is still the case they may be in a difficult position.

One thing that seemed to be taken on board by DHSC was that ME/CFS services should not be under psychiatry. Of course people can get re-diagnosed but the draft template for ME/CFS seems to steer clear of any mention of psychological medicine. That might of course change since this is only a...

I think some messages are being heard, even if not acted on. The message about needing a severe service seems to be getting through. But the DHSC people obviously buy in to PROMS - liking the idea of monitoring even if the monitoring is useless. It is a pity that AfME are not really interested...

It would target the NK cells just the same. The absence of many NK cells from blood doesn't necessarily mean there aren't any. They may be busy in tissues.

I see it as relatively unlikely that the psychobehavioural rehab people will want to get involved with severe ME/CFS. It doesn't fit their 9 to 5 rehab unit model. But otherwise, yes, I see the rehab services expanding. The link in with Long Covid is part of this because rehab is more credible...

Oh yes. Queen Square would be on to it straight away I would think. Neurologists like nothing btter than some immunotherapy.

I would guess the same. Their NK cells are just a bit more sneaky hiding away.

The part that i could access repeats a lot of old confusions relating ME/CFS to AIDS and overemphasising dubious biological findings.

Certainly could be. The apparent lack of functional NK cells in old studies might even mean that they are too busy somewhere else. If you give people steroids their neutrophil counts go up, not because there is inflammation needing neutrophils but because neurtophils have been made too lazy to...

There are plenty of academic centres that could get involved - Edinburgh, Cambridge, Manchester, Leicester... But there has to be a lead to entice clinicians in and there have to be clinicians with some common sense to respond.

It looks from the meeting today that the DHSC have already decided to keep the old model, no digging required, just water the shoots. And I see people with ME/CFS being let down by advocacy groups and charities all around - wittering on about irrelevances, or their own little projects. But...

I attended the ForwardME meeting with DHSC representatives today. It was disappointing. I emphasised the need for a new service model delivered by a physician withou multidisciplinary rehabilitation. The DHSC people did not even acknowledge the suggestion. Unfortunately, the medics present...

I am not familiar with these authors. They mention DecodeME but the claim seems to be based on gene expression rather than genetics. It seems a bit of a stretch to write a opinion paper based on some findings like this.

Maybe Claire Every is a lone voice of reason within a bodged charity set-up? Bringing in Chew-Graham makes a mockery of the whole thing.

I agree that this is of conern. AAt recent meetings I have tried to emphasise that the DHSC should focus on, and get a policy for, severe, before it even considers a mild/moderate pathway. The mild/moderate pathway looks to be based on the wrong model. I think Charles is at least to some extent...