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    Why some people with ME/CFS react more strongly to medications

    Less of an issue these days ( ironically as my daughter is worse than a couple of years ago) Whilst drugs do have reactions- fillers can be problematic - Synthetic vit E is one. Some colours can be problematic
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    Teens may have come up with a new way to detect, treat Lyme disease using CRISPR gene editing

    https://www.cbsnews.com/news/teens-may-have-come-up-with-new-way-to-detect-treat-lyme-disease-60-minutes-transcript/ "America's future as a science leader may depend on students like the ones you are going to meet tonight, teenagers from Lambert High School in suburban Atlanta. They may have...
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    NHS Scotland , Right decision service website.

    Greater Glasgow and Clyde run support services out of the old homeopathic hospital which includes LP .
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    Trial Report Resistance Exercise Therapy for Long COVID: a Randomized, Controlled Trial 2025 Berry et al.

    From Harriet Carroll on X Colin Berry @ColinBerryMD who ran the CISCO-21 resistance exercise in long COVID study has replied to my comment Utterly predictable that he completely bypasses the point of my comment. Imagine running a cancer trial with ZERO oncologists on the team, doing...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    "Add on to take off " classic .
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    “Shake-up of services needed to ease fibromyalgia pain”

    This was a main feature on Radio Scotland for the breakfast programme this morning . I was driving and tuned in - it has popped up in follow on programmes It's more about diagnosis and the need for medics to accept it's a real condition . There's no pathway and it's a postcode lottery re...
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    Fred Rossi - Writings related to ME/CFS

    Fred Rossi has also done another article on the disappearing workforce . He writes well . https://open.substack.com/pub/centerleftstack/p/when-showing-up-is-not-enough?utm_source=share&utm_medium=android&r=1d5w3s
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    Cellular Nitrogen and Energy Metabolism in ME/CFS, 2025, Armstrong et al

    Perhaps more epigenetics at play
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    Fatigue in children and young people up to 24 months after infection with SARS-CoV-2, 2025, Richards-Belle, Stephenson, Chalder+

    Welcome to the world of UK paediatric studies
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    UK BACME ME/CFS Guide to Therapy 2025

    Perhaps this is a reference to places that have no " specialists" . Where this model has not been made available . Scotland has no specialists . If this forms part of the delivery plan response , it's likely that it will become the embedded model . I've tried to flag this up , people just...
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    The HERITAGE study (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE)

    Is this not what @Suffolkres has been doing ?
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    Cellular Nitrogen and Energy Metabolism in ME/CFS, 2025, Armstrong et al

    not going to make headway if PEM is described as "extreme tiredness after exertion " - if only eta - it would be interesting to know if there is a metabolic male / female difference in substrate preferencce
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    Trial Report Resistance Exercise Therapy for Long COVID: a Randomized, Controlled Trial 2025 Berry et al.

    eyes also on indication of PEM (above top circled area) - PEM needs better definition?
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    UK BACME ME/CFS Guide to Therapy 2025

    I fear for those without advocates and where power asymmetry manifests most strongly.
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    UK BACME ME/CFS Guide to Therapy 2025

    Sadly it will damage far more people than the MEA
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    UK BACME ME/CFS Guide to Therapy 2025

    This, PROMS and an NHS app. What could possibly go wrong ?
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    Relationship between physical performance and perception of stress and recovery in daily life post COVID-19—An explorative study, 2023, Zorn et al.

    That's a generous assessment
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    Daily stress and worry are additional triggers of symptom fluctuations in individuals living with Long COVID... , 2025, O'Connor et al.

    Posting here prior to reading . It's being circulated by an infectious diseases consultant based in Scotland who undertakes research into long COVID ( and as funding is being bunched together more often , likely will be involved with ME/ CFS ) It would be interesting to determine which scales...
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    Synopsis of 2024 VA Long COVID Clinical Guidance for U.S. Veterans: Part 1, Nervous System–Related Symptoms, 2025, Wander et al

    If you can't cope with not being able to help and can't tell it as it is to the patient, here's your fall back
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    Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway…, 2014, Bakken+

    Stopped for lunch before a meeting and reading this thread . Random thoughts which may not be relevant. Hormones . Ratios rather than absolutes may be important. Whilst focus tends to be on estrogen , it could equally be testosterone. Taking it back further the basic block is cholesterol...
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