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    UK doctors knowledgeable in ME/CFS?

    Yep. She's active with longcovidkids and has been great at awareness raising . Need many more like her .
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    Protocol Genetic and Metabolic Markers of BH4 Deficiency in Long COVID - OMF

    From memory BH4 synthesis is folate dependent , so SNPs on MTHFR can affect the amount of BH4 ( also impacts methionine and SAMe) Not so simple.
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    UK doctors knowledgeable in ME/CFS?

    Dr Claire Taylor in Dundee has made long COVID a specialism. Given the huge symptom overlap she does take on ME/CFS patients . I have heard some good things re symptom knowledge and management from others As usual private only and long wait list https://www.drclairetaylor.com/
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    Functional Neurological Symptom Disorder: A Continuing Conundrum for the Perioperative Physician, 2023, Chin and Kumaraswami

    It would be interesting if there were a male comparative case to see if the same procedures and diagnosis were found. Sorry, but being female is part of this problem.. Are there figures for sex split in FND diagnoses ? @dave30th
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    UK Government ME/CFS Delivery Plan consultation

    None here either I was hugely concerned about this 6 years ago - in reality that's not been a bad thing at all ..
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    Newly uncovered biochemical and functional aspects of ferritin, 2023, Yanatori et al.

    My carer aunt has high ferritin and anaemia . Iron supplementation has made a huge difference to her health which she notices almost immediately when she stops . ETA anaemia is recent . Previous iron panel was ok .
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    Long Covid in the media and social media 2023

    Practically the general definition of a teenager' s diet Given the physical and emotional changes it doesn't seem surprising that there are deficiencies there's a huge requirement for chemical substrates
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    Endoscopy - sedation ?

    Thanks @Binkie4
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    Endoscopy - sedation ?

    Thanks @SunnyK . The procedure was postponed twice , so happened in June . The procedure went ok. The nurse could see my daughter was uptight and was lovely . She clearly explained exactly what would happen which always makes a huge difference. Numbing spray worked ok. Just a very weird...
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    Clinical signs in functional cognitive disorders: A systematic review and diagnostic meta-analysis 2023 Cabreira, Stone, Carson et al

    They are legacy building. Setting up a field for a new generation to take forward. It's unsettling how few choose to see through the misdirection.
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    Open What happens when people with ME keep symptom diaries?

    Too much energy and cognitive ability to maintain physical ( as in paper ) symptom diaries - probably impacted negatively when we did one way back. My daughter can't remember what she's eaten 20 mins after eating it , so it can be a misremembering record if you can't fill it in in real time...
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    Long Covid in the media and social media 2023

    Video from Germany with subtitles Video For discussion go to News from Germany where this is also posted.
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    USA: The RECOVER Initiative - Long Covid research

    Climate change physicists . Knowledge of interlinked systems, tipping points , positive and negative reinforcements to interlinked systems. Couple this with machine learning and some " fancy pants" maths ( quoting Broderick) and we might get somewhere .....
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    New free short module for clinicians on severe ME/CFS, Dr Nina Muirhead, 2023

    It's a good resource . It saddened me to think how far from the correct answers we still are .
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    USA: The RECOVER Initiative - Long Covid research

    Cancer research also benefitted once physicists got more involved .
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    Trial Report Occupational therapy-based self-management education in persons with post-COVID-19 condition related fatigue, 2023, Hersche

    60 mins and 90 minutes are a long time to concentrate. Add in travelling and this is probavly not reaching a cohort who need it
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    Long Covid in the media and social media 2023

    The audio of Madeline Miller reading the article is excellent
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