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    Corporate manslaughter - mental health death

    Posting here for info . The Independent newspaper report also highlights other investigations . Whether this will affect attitudes and processes remains to be seen, but perhaps it's small steps in the right direction...
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    UK Government ME/CFS Delivery Plan consultation

    some people with ME have english as a second ( or third or fourth) language - dosn't seem to be other language availabilities ( again )
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    Hypothesis The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maureen R. Hanson

    CPET is available at colleges / unis studying sports science . I contacted some UK ones a few years ago with a copy of a protocol ( think it was Workwell ) and they confirmed that they could set up the test . Key was that they needed a GP/ doctor sign off . Can't remember costs off top of...
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    Hypothesis The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maureen R. Hanson

    Yes. Infuriating. Not everyone can do CPET though.
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    Long Covid in the media and social media 2023

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    Long Covid in the media and social media 2023

    And again Long COVID problems being picked up by financial media ...regulator backlog impacting research (MHRA) https://www.ft.com/content/49287f26-7aa6-4606-8c81-a2ebbe72247d?sharetype=blocked
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    Long Covid in the media and social media 2023

    Not quite long COVID - mods feel free to move if more appropriate thread . " Immunity theft " as a concept highlighted in this mainstream article https://calgaryherald.com/opinion/columnists/opinion-we-dont-know-whats-causing-the-tsunami-of-sick-kids-but-wed-better-figure-it-out-fast
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    Probably related to @Andy ' s posts on podcasts POTS seems to be being redefined ...
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    Post-exertional Malaise in ME/CFS - Webinar for Health Professionals - Dr Cathy Stephenson

    This is a great resource . For newly affected it will be priceless . Thanks to all involved , information such as this really will make a difference .
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    General disability advocacy social media posts worth highlighting

    Crutches and Spice is excellent Media communications are her speciality , so Instagram and tiktok is where many pick up info, but she blogs too https://www.instagram.com/reel/CwQ5CvErHBy/?igshid=MTc4MmM1YmI2Ng== ETA US based
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    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    And moving into other areas quite quickly thanks to changing climate
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    Research into formation of ribosomes

    https://scitechdaily.com/new-research-sheds-light-on-the-formation-of-one-of-natures-most-fundamental-molecules/ Interesting as suggestion that parts of process may be dependent on cells metabolism From paper https://www.science.org/doi/10.1126/science.adh3892
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    Forbes: Public Pushes Back On CDC’s Plan To Weaken Infection Control

    Lipkin
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    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    Does the increase in home tuition tally with the drop out rate? So getting worse but still in education of some sorts
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    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    From memory this teams' definition of PEM is not wonderfully accurate. There is never any acknowledgement of key issues in paediatrics. the huge power imbalance which can manifest in therapist pleasing or telling people what you think they want to hear having school attendance as a measure -...
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    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    Were the participants asked ?
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    All-or-Nothing Behavior and Catastrophic Thinking Predict Fatigue in Inflammatory Bowel Disease: A Prospective Cohort Study 2023 Moulton Chalder et al

    How long before " predictive coding" becomes part of this teams' vocabulary?
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    Do the findings in LC suggest two distinct phases for ME/CFS onset?

    Yes, I think true convalescence may make a huge difference. I often wonder where we would be if we hadn't followed the " Bath activity sheets" in early illness with a very competitive child. We need info on other factors too Genetics / epigenetics Existing viral / bacterial status Given...
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    Functional neurological disorder: new subtypes and shared mechanisms, 2022, Hallett, Dworetzky, Stone et al

    Ah so patients are all Buddhist monks ... ( power of mind over physical )
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    Protocol Genetic and Metabolic Markers of BH4 Deficiency in Long COVID - OMF

    Does this mean it's not doing what it's meant to be doing and thus is in serum when it shouldn't be ( a bit like functional B12 deficiency)? Could it be protective as something else is out of whack? When something so interdependent to many processes seems different would it not make sense to...
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