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    Long Covid in the media and social media 2023

    They clearly have established a reputation .
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    Clinical Features and Follow-up of Referred Children and Young People With Long COVID, 2023, Weakley et al.

    78% is not a whole number 22% not improved is not insignificant. It would have been interesting to see if there was any correlation between those defined as moderate to severely disabled and levels of improvement. Good to see autonomic dysfunction being diagnosed . It would have been good to...
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    Study clarifies how 'junk DNA' influences gene expression

    Interesting article . I wonder if this has been considered in context of ME/ CFS https://phys.org/news/2023-09-junk-dna-gene.html
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    UK - Energy - suppliers, costs, grants, meters etc

    We have put off a smart meter for the past 5 years - largely as the first few iterations were too hackable. The default " send info" on smart meters is generally every 30mins and this provides patterns of use - this has already been used in research looking into dementia. Does anyone know if...
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    “Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany

    My daughter's blood has been noticeably thicker and slower on a couple of occasions ( normally no issues , if anything she's a " spurter") This coincided with gastro problems which took a lot out of her. So perhaps linked to severity and/ or something else going on concurrently. She's not...
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    Sewing and accessible sewing machines

    I have ended up with more than 1sewing machine . A present from an old lady (electric conversion of old singer which is wonderful for thick fabric ) a Brother which I bought to replace a very old one bought cheaply from eBay - this has a start -stop button a Silver machine given by one of...
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    Long Covid in the media and social media 2023

    If you have a dry sense of humour posts from the Vertlartnic may raise a chuckle. Otherwise the graphics are succinct at getting info across the melee of misinformation
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    United Kingdom: Science Media Centre (including Fiona Fox)

    Moved post Thread worth reading .. James Coyne has also been active on X ( twitter) re Weasley , Carson et al ETA coyne tweet
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    Long Covid in the media and social media 2023

    Making data meaningful ., except too many m and ms ! Worth sharing
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    USA: News from #MEAction

    Moved post
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    Diane O'Leary, philosopher, media articles and interviews

    Moved posts Diane O'Leary has an article on medical gaslighting. .
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    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Must be uncomfortable for BACME to sit down with all those skelfs from prolonged fence sitting
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    Thesis Adaptation and validation of the Health Anxiety Inventory (short version) for medical settings, 2023, Colenutt

    Do we know the number of people with each condition ? I wonder if the drop at follow up questionnaire was even across conditions ?
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    Preliminary clinical and cost effectiveness of augmented depression therapy versus [CBT] for the treatment of anhedonic depression, 2023, Price et al

    Sessions are noted as " up to X number " A " minimum adequate treatment dose was completed by X number" Do these session numbers and treatment doses correlate ? A booster session sounds good - is this follow up making the difference ( rather than simply being spat out if the sausage making CBT...
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    DNA computer Liquid Computer Made From DNA Comprises Billions of Circuits

    @Kitty https://www.scientificamerican.com/article/dna-the-ultimate-data-storage-solution/
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    DNA computer Liquid Computer Made From DNA Comprises Billions of Circuits

    I had heard of DNA being used as a data store as it has huge capacity . This is a step further . https://www.sciencealert.com/liquid-computer-made-from-dna-comprises-billions-of-circuits
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    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    No understanding of PEM. Little / no understanding of common comorbidities Lumpers not splitters . A dangerous place . From memory when Phil Hammond announced his retirement on twitter he received many tweets from former patients saying what a lovely doctor he was , but the treatment made them...
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    UK - The Young ME Sufferers (TYMES) Trust

    My daughter got a birthday card from them in August , so they are still working. ( thankfully)
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