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Not quite long COVID but interesting thread . Very long

Used to be the sunlight aspect ( vit d) and Celtic gene that were thought to play into distribution. Heat - well there's always a joke for Scots cold tolerance / heat intolerance , so who knows

No treatment hardly qualifies as second rate ( that would imply there actually is treatment) ...

Reminds me of a Facebook post from around 3-4 years ago on a closed group where someone with ME/CFS had been assessed by DWP and advised that they were capable of working for 12 mins per hour. Where in earth do you find an employer offering that .... and how would any employer find your illness...

Interesting twitter thread highlighting mechanism . Seems to be relevant to POTS too. Given overlaps the mechanism is interesting - calcium channels , which have been discussed in ME/CFS research. For some cold exposure reverses effect ( thinking of "cold" treatment collaborative research by...

Merged thread Ady Barkan has died of complications of ALS . A tireless advocate and campaigner who has helped to change the narrative around care in US . RIP

Given that "causes" vary , it's the end state that is common . There are probably many biological pathways to this end state , which may be modulated by genetics / epigenetics, so things working / not working didn't seem that odd to me - just frustrating . It's a " systems " condition , and...

This, so much this . It's wonderful for muddying waters and perpetuating harm.

I don't know but am often struck by symptom overlap with Parkinson's / Alzheimer's ( which both can feature hallucinations and paranoia) , which is reinforced by some people responding to dopamine modulating medication, so there may be a mechanism / shared symptom pathway. This may be more...

Mmm. Not much sleep tonight , so thoughts are a bit random . Did they look at gut bacteria/ microbial balance prior ? Seratonin is made in gut and anti depressants can affect gut bacteria. Estrogen degradation can be affected by gut bacteria , so if female, ( who were in majority here ) I...

Religion / cult ? Has all the attributes

I think billboards are probably effective in USA as largev road network and public transport out with metropolitan areas is poor. So large roadside messaging may be effective. Billboard type signage can also be memorable on long monotonous stretches of road , but it's not common here .(UK) If...

Yes undoubtedly the guideline has changed , and that is long overdue and hopeful. But on the ground , where it's medical staff delivering service , change is noticeable by its absence . This may simply reflect the mammoth task of turning a ship around , however, that's where this type of...

Sadly progress with NICE remains on paper for many . Change has yet to happen - prevailing opinions are still an issue.

Given some pwME have permanent headaches which simply ramp up and down a comparison group would be interesting .

Twitter feed link Paper https://doi.org/10.1016/j.cell.2023.09.022 Simplified summary https://www.news-medical.net/news/20231024/Community-immunity-Steering-the-evolutionary-course-of-SARS-CoV-2.aspx ETA reposted link

St Mary's