Search results

It takes in 15-25 year olds - that's a huge spread, so trying to be relevent to everyone and factor in brain fog I suspect. I wonder how much of a co-production this was - whether those providing the testimony were involved in the development of the final product. Graphics are loved by PR ...

This is an excellent idea .

Contains such gems as The Long Covid Clinic also offered the opportunity to speak to a psychologist to help me process it all. But despite doctors telling me it was a physiological issue, the therapist told me that my symptoms were completely psychological. She offered me EMDR therapy and...

Whats " functional disability" given objective aspects like cognitive function , balance and walking did not improve ? How are benefits of human interaction and validation accounted for , as ever , being listened to and talking with others has it's own therapeutic value irrespective of any...

This has made my week.

Using the 'community review' function in medrxiv might be a way of inputting in the hope that the published version will be better

follow the money - this is for app development

It would be good to get input from the severely affected if possible given that screen use can be limited ( if at all) , before app use becomes an integral part of monitoring conditions for medical input, and people are thrown under the bus again.

This is pretty much what was pointed out here and on social media to Sarah Tyson re her PROMS survey(s)

PROMS and app development. When I queried Sarah Tyson on Facebook re PROMS development asking for the stats plan I was simply bombarded with a list of statisical tests with no context or structure, which seemed to imply that cherry picking would be part of the process. This looks like it.

And where is the support when goals are not met ?

thank you - some sense at last

still waiting for the penny drop moment - why is so much of this seen arse over elbow ? PPS participants scored significantly higher on anger, disgust, fear, sadness, and shame, and lower on joy. Disgust, fear, sadness, and shame correlated significantly with somatic symptom burden; anger...

3–6 mg/day from others I know who have tried this this seems a high starting dose ?

“Moderna’s CEO announced the company will no longer invest in new Phase 3 vaccine trials for infectious diseases: ‘You cannot make a return on investment if you don’t have access to the U.S. market.’ Vaccines for Epstein-Barr virus, herpes, and shingles have been shelved.”

From the substack post " They are kindly selling limited edition ‘One Red Leaf at a Time’ bags of red leaves bearing The Red Tree and ME logo and a QR code for information about the research at The University of Edinburgh led by Professor Chris Ponting. Jo and Rob are also very generously...

it's a bit convoluted mainly as the order process is via messaging via the " contact page " https://www.rsfinechocolate.com/contact From the article Note that the £5.25 is a standard block postage rate ( probably based on most popular order parameters) , so unless you're buying multiple packs/...

https://open.substack.com/pub/theredtreeandme/p/all-you-need-is-love-but-a-little?utm_source=share&utm_medium=android&r=1d5w3s Limited edition " red leaf" chocolates supporting Chris Pontings research

sadly there is an almost complete lack of curiousity with medics

I know nothing about this - but is not a slight crease after 12 months worth monitoring further over time to see how it pans out ? Up to one year after discharge is the cut off point for the study - it could suggest at a glance that after 12 months this is not important and everythings going "...