Search results

I 've had feedback from someone who attended this. Positive feedback re good presentations and perhaps as importantly genuine excitement in the room at where research is going. 90-100 people there and networking.

Perhaps worth looking at aspects for Scotland before we have MEA / BACME format and apps as the go-to.

Thanks . I should have read the whole thread !

"page not found" when I click on link

There have been attempts at trials. LDN has had attempts to get a trial for around 10 years Funding has been the issue . The accepted bps medical narrative has probably worked against trials .

From MEAs Facebook page Hi all, I'm an MA journalism student at City St George's. I'm investigating the impact that misunderstandings about ME/CFS are still having today. Dr Charles Shepherd told me he knows of people who were recently recommended Graded Exercise Therapy by doctors despite the...

The Sick Times are looking at what climate change means for those with long COVID Changes to weather patterns and extreme events have wider impacts for chronically ill . Seeking input from people in American South who have had to cope recently with ice storms , but also previous events . It's...

From X Feedback request: If you used the South Coast Fatigue Service for ME/CFS since 2022, we want to hear from you. Please share your experience, whether it was good, bad, or neutral. You can leave a comment or email us at health@meassociation.org.uk to share your thoughts.

" This scale will make it relatively easy for rehab people to show they have achieved improvements when in fact they have not" Exactly this . The King is dead , long live the King . I think this needs a response akin to the BACME letter . This has the potential to do as much damage .

Coproduced ? That's seems elastic interpretation given the discussions here and on the MEA Facebook page . I wonder how much participation the patient advisory group had , and how much stats / methodology background they had .

There should be a copy of " statistics for dummies " accessible on forum resources . I found a pdf of it some years ago and found it useful and forwarded a copy to be uploaded / linked. Its a measure of how the thing you are measuring ( sample) is representative of the population it relates to...

Definitely this At our second paediatric appointment we used a wheelchair which was noted in the written report to GP. We explained at the appointment that after the first visit my daughter had tachycardia when getting back to car ( we had little knowledge of PEM then) - this was probably put...

There have been queries re what's happening to the £4+ million specifically allocated to health trusts a for long COVID and ME/ CFS services MEA posted a survey for Ayrshire + Arran NHS Trust on their Facebook page re the service proposal which you can complete even if you do not live in...

The study included 3,735 mother–adolescent dyads and a subsample of 2,668 mother–father–adolescent triads containing maternal and paternal information. Where 's the father only group to make this truly comparable?

My NHS dentist does home visits , mainly for elderly patients. My aunt resorted to private dentist for a home visit.

Children become exceptionally good at telling people what they think they want to hear , particularly if they are uncomfortable and want to make a situation end sooner rather than later . This is so basic , and psychology rarely acknowledges it . ETA changed recognises to acknowledges

Is there something different about female pain? There have been a growing number of messages/ news articles about gynaecological / medical procedures being done with no pain relief offered and pain has been excruciating. It just doesn't seem to be a consideration.

Market capture . The gravy train keeps rolling..

FFS. How did chronic pain become so misunderstood. ( Slight sarcasm - my partner has recent experience of pain clinics where the bps model is firmly entrenched ) Disappointingly the authors are mostly female . I doubt any of them has endometriosis.

It probably provides validation for others who have experienced the same thing. Power asymmetry will factor into this type of consultation, and how that plays out is very individual. .it would have been useful to have provided evidence / info as to why this is so crap and what could be offered...