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  1. Grigor

    Dutch Health Council on ME/CFS tomorrow on national news

    Me too of course but Knoop and Rosmalen. 2 of the members are friends with the PACE authors, Per Fink, Crawley etc. So yeah it was kind of mission impossible as 4 of the 7 clinicians were BPSers. CBT has indeed a GET component to it so GET is still around. Blijenberg his little creation...
  2. Grigor

    Dutch Health Council on ME/CFS tomorrow on national news

    It's a step in the right direction for sure Too many BPS involved but still.
  3. Grigor

    Dutch Health Council on ME/CFS tomorrow on national news

    With English (Google translate)
  4. Grigor

    Dutch Health Council on ME/CFS tomorrow on national news

    I feel this one is very important for all of us. Like David Tuller said if it's any good then it could have an effect on the rest of Europe and world
  5. Grigor

    Tonight on Dutch TV - ME / CFS documentary

    Thanks for all the nice comments. We all expected more. Sadly it didn't really deliver but I do think CBT was given a question mark. Until recently that rarely happened. Let's hope the media will keep trying to get the story right.
  6. Grigor

    A Life Hidden - Blog posts by Naomi Whittingham

    I'm happy her blog is well received. I felt it was important to share her thoughts and wisdom with everyone but I can't help but feeling angry about the situation with ME as well... Thank you for sharing it!!
  7. Grigor

    Efficacy of web-based cognitive–behavioural therapy for chronic fatigue syndrome: randomised controlled trial (2018) Knoop

    Yeah, they (Blijenberg) don't want anyone in the trials that are fighting for their benefits. It's considered a perpetuating factor. Disability means you have a chronic illness.
  8. Grigor

    Efficacy of web-based cognitive–behavioural therapy for chronic fatigue syndrome: randomised controlled trial (2018) Knoop

    That's a good question. I haven't read this paper but normally Blijenberg will do stuff like that. I've seen it in other studies like this one. Although it's not for CFS...
  9. Grigor

    Efficacy of web-based cognitive–behavioural therapy for chronic fatigue syndrome: randomised controlled trial (2018) Knoop

    They combine CBT with a GET component. So they say CBT is effective but really its CBT and GET.
  10. Grigor

    "Exquisite sensitivity to medication"

    Ì have to up meds with 1/32th of a pil. Even that is way too high. Really annoying. Can't reach a real good therapeutic dose like that.
  11. Grigor

    Royal College of Paediatrics and Child Health conference, 13-15th March 2018, "Children First – Ethics, Morality and Advocacy in Childhood"

    It looks rather harmless in this article. But does she claim a cure?? https://www.google.nl/amp/s/amp.theguardian.com/healthcare-network/2016/nov/03/working-nhs-miserable-dance-ward-hip-hop
  12. Grigor

    2008 Knoop "Recovery of CFS was possible, even if the physical activity level of the patient remained low."

    Here's a link to the study so you don't have to download it. I've never read anything as weird as that statement. It makes total sense why the study of Leonard Jason was so important. http://www.tandfonline.com/doi/abs/10.1080/09638288.2017.1383518 "Physicians viewed recovery as complete...
  13. Grigor

    Elevated brain natriuretic peptide levels in chronic fatigue syndrome associate with cardiac dysfunction: a case control study, 2018, Newton et al

    This is probably linked? https://www.healthrising.org/blog/2016/06/27/chronic-fatigue-syndrome-small-heart-disease/
  14. Grigor

    Insecure Attachment and Unexplained Illness, A therapist's map - 21 April 2018

    I checked her dancing background. It's a technique called Laban. You really don't need much skills for that. It's a sort of pedestrian type of contemporary dance. In other words I'm sure she sucks and yes it will be ugly.
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