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  1. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thank you @JenB. Yes, there are many diseases that overlap with each other. So it's really not a matter of if there's an overlap in symptoms there won't be distinct symptoms for each condition. Otherwise we would never be able to separate any disease for that matter. I definitely mean “not...
  2. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Hi @JenB, How are you doing? In your tweet, and as Michiel previously mentioned (see page 10), you felt that the fact that ME and CCI have symptoms that are distinct from one another was "simply untrue" I wondered about that as well. Although PEM/PENE is just one of the symptoms. As far as...
  3. Grigor

    Oxford Autoimmune Neurology Meeting 2019 - 5th & 6th June

    I like him. A gutsy researcher at Oxford! We need this. Yes!!
  4. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    It's fantastic to hear that people have improved as much as they did It's admittingly and seemingly hopeful but as they say; safety comes first! Thank you @Michiel Tack and of course everyone else for providing us with the necessary information. Heroes! ♥️♥️
  5. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    My main concern at the moment. Thank you!!
  6. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Very grateful for the information you provided!!
  7. Grigor

    Jen Brea: My ME is in remission

    Indeed fantastic news that she's in a remission. Amazing!! On the downside it's a little confusing for my brain fogged living in the dark severe ME self.
  8. Grigor

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Oh thanks. Amazing. ☀️
  9. Grigor

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Sadly have to pay!!
  10. Grigor

    A possible role for mitochondrial-derived peptides humanin and MOTS-c in patients with Q fever fatigue syndrome and CFS, 2019, Raijmakers et al

    Note that van der Meer is a good friend of Peter White and a CBT promoter.
  11. Grigor

    Is insulin resistance the cause of fibromyalgia? (Prelim report) (2019) Pappolla et al - Retracted Dec. 2019

    Haven't seen anyone on Twitter getting excited or having a response from Metformin with Fibro. Hmmm.
  12. Grigor

    Mitochondrial DNA in liver inflammation and oxidative stress, 2019, Ren et al

    My liver values were slightly elevated. My GP just felt it had to do with me being overweight. Haven't seen her in 6 years so I don't know how she knows. Don't tolerate meds or sups. Even crumbs.
  13. Grigor

    Assessment of the scientific rigour of RCTs on the effectiveness of CBT and GET for ME/CFS: a systematic review (2019) Ahmed et al

    In 2016 I had some contact via Twitter with Mr. Vrijhoef. He was going to come to the screening of the Forgotten Plague. He clearly has an interest in the subject. He sometimes retweets some of my blogs and other stuff.
  14. Grigor

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Thank you for your answers. In a crash but very helpful!!! Brainstorming ❤️
  15. Grigor

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Emile Keuter is a BPS proponent and obviously still tries to psychologize the whole thing. So we know something is in the blood but how do we know that something is not a result of our psyche. Even though it's in a lab, could it have survived in our blood? Some sort of stress reaction that...
  16. Grigor

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Awesome report. Very exciting! Thank you!
  17. Grigor

    Discussing acceptance and commitment therapy in ME/CFS.

    As always. Well done sir!!
  18. Grigor

    The ‘cognitive behavioural model’ of chronic fatigue syndrome: Critique of a flawed model, 2019, Geraghty et al

    I finally managed to read the whole thing. Late to the party. I too felt it was at times a bit quick in jumping from one thing to another. The biomedical abnormalities were a bit too overstated? PEM is an important part why CBT and GET do not work. That wasn't too well explained? Maybe I...
  19. Grigor

    MitOX 2019, 30th April, Oxford, UK. [A one day meeting for researchers with an interest in mitochondria]

    Can't wait either. Thank you!
  20. Grigor

    Cognitive behavioural therapy for ME/chronic fatigue syndrome is not effective. Re-analysis of a Cochrane review, 2019, Vink & Vink-Niese

    Ok no problem. Thank you!
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