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  1. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Very.....
  2. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Quite worrying that he wants to travel to Spain in his condition. These patients are they cured?!
  3. Grigor

    The Psychosomatic Approach to Primary Chronic Rheumatoid Arthritis. (1965) Ehrlich

    Are there any studies or just articles describing these surgeries? How inadequate they were?
  4. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thank you for sharing. I'm too ill to get tested so I don't really need to worry about it for myself but I do worry for others!
  5. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Is there a link where you posted it? I would like to read it if that's possible. Thank you in advance.
  6. Grigor

    Predictors of New Onsets of Irritable Bowel Syndrome, Chronic Fatigue Syndrome and Fibromyalgia: The Lifelines Study, 2019, Monden et al

    Rosmalen who was part of the Dutch Health Council committee that wrote an advisory report on ME/CFS, refuses to adhere to its conclusions (ME/CFS is a chronic complex multisystem disease). Keeps calling CFS a functional somatic syndrome.
  7. Grigor

    The PACE trial video series by A Broken Battery

    Let me know. Otherwise I can ask on my page as well.
  8. Grigor

    Sci-hub blocked in Sweden

    Just download, install, sign up and push play. As far as I know (don't take my word for it) they won't be able to track you so that's a good feeling. https://windscribe.com/
  9. Grigor

    Sci-hub blocked in Sweden

    I used Windscribe VPN to bypass anything my ISP prohibits. Scihub works but when it doesn't VPN is great.
  10. Grigor

    Researcher Interactions Video: Science for ME Q&A with Prof Simon Carding, Quadram Institute, June 2019

    https://www.sciencedaily.com/releases/2019/04/190409093725.htm
  11. Grigor

    Researcher Interactions Video: Science for ME Q&A with Prof Simon Carding, Quadram Institute, June 2019

    I would also love to know what he says. Really excited about the fecal transplant.
  12. Grigor

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Ugh that sucks!!!! Such a pity!!
  13. Grigor

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    Well done on the draft so far!! Thank you @Michiel Tack @JenB and @Jeff_w.
  14. Grigor

    A general thread on the PACE trial!

    It's not the therapy!! It's the patient!! https://www.ncbi.nlm.nih.gov/pubmed/15784798
  15. Grigor

    IiMER International Conference Week London 2019

    Ah saw the tweets but shared the thread. Awesome. Thanks.
  16. Grigor

    IiMER International Conference Week London 2019

    Thank you. That was my impression as well. Sadly!!
  17. Grigor

    IiMER International Conference Week London 2019

    Was there anything new or potentially groundbreaking that stood out? There was barely any live tweeting on the first day?
  18. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Lets not forget the title of this thread. People are worried about the safety of the community.
  19. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Let's not forget that potentially unnecessary traveling for the very severe ME patients to another country for a scan where we don't know what cut offs are being used to determine CCI can have it's devistating effects as well. That's even before the surgery.
  20. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Well again Prof Todd Davenport definitely is knowledgeable enough about ME and CCI. So you're proving here exactly that CCI does have it's distinct clinical picture. That doesn't mean you can't have both ME and CCI simultaneously. Again distinct not overlapping
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