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  1. TiredSam

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    For me not trying anything is giving myself the best shot at getting better. Even the anecdotal stories I hear about something which helps are sometimes followed a few months later with a report of how it stopped working, as the ME body seems to readjust to the level of shitiness it wants to be...
  2. TiredSam

    Fatigue as the unconscious refusal of the demands of late capitalism, 2021, Diserholt

    I'm guessing Marxism is the answer then. Come the revolution the sick shall rise from their beds ...
  3. TiredSam

    News from France

    Well at least their papers will have "Rank Lemon" at the top.
  4. TiredSam

    News from France

    They have to say that to justify the huge grants they need to save us all.
  5. TiredSam

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    And Bristol or anybody else couldn't be bothered to contact the journals for copies of the correspondence? If it was really sent the journals will have copies, not everyone loses stuff or has a convenient team of gremlins on standby. I doubt that the journals would be able to find any...
  6. TiredSam

    Norway: Article about ME seminar with security

    "Who's really being mugged? Time to spill the beans."
  7. TiredSam

    Norway: Article about ME seminar with security

    Rather than hoping that the police may charge people with wasting their time and send them a bill for the man hours wasted policing their events, we should also bear in mind that they may enthusiastically side with the BPS brigade and get up to this sort of behaviour...
  8. TiredSam

    Norway: Article about ME seminar with security

    Claims of being bullied or harassed rarely seem to be subjected to scrutiny, the instinctive reaction of most decent people is to jump to the defence of the victim without it occurring to them that they have just been lied to. Who would believe that there are people who behave like that...
  9. TiredSam

    Norway: Article about ME seminar with security

    The coffee cup thing happened six years ago: Post #145 here: https://forums.phoenixrising.me/thr...ian-research-seminar.43876/page-8#post-730222 Chalder responded to a question about research by threatening police and having the questioner thrown out, just like Crawley did with David Tuller...
  10. TiredSam

    Aphaeresis/ Apheresis (for removal of microclots)

    The following article warns about being encouraged to try HELP apheresis by the above documentary: https://www.tagesschau.de/wissen/gesundheit/long-covid-blutwaesche-101.html And notes that there is a waiting list of 8000 long-covid patients queuing up to pay Dr Jaeger 3,000 euros a go to have...
  11. TiredSam

    Aphaeresis/ Apheresis (for removal of microclots)

    https://www.ardmediathek.de/video/hirschhausens-check-up/hirschhausen-und-long-covid-die-pandemie-der-unbehandelten/das-erste/Y3JpZDovL2Rhc2Vyc3RlLmRlL2hpcnNjaGhhdXNlbnMtY2hlY2stdXAvNjM0OWExZDYtODFjYi00N2U3LTg2MzYtZDYwZmMyOTU5Njk1
  12. TiredSam

    Aphaeresis/ Apheresis (for removal of microclots)

    One hour documentary about this on Germany's first channel at a prime time slot - 8:15 pm. Watching it now.
  13. TiredSam

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Maybe they're too tired and their carers are too busy, which is the same reason why ME advocacy was so ineffective for decades. Liking tweets isn't going to get anyone anywhere, but that's about all many sufferers have the energy for.
  14. TiredSam

    Closed UK: DecodeME updates, was recruitment thread.

    I've just listened to it and I didn't hear that. Did I miss it or have they removed it?
  15. TiredSam

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Unless the presentation included the sentence "It used to be thought in some quarters that personality type was relevant, but that just turned out to be a load of ill-informed pseudoscientific abusive piffle", I really don't know what it's doing on the slide.
  16. TiredSam

    Suzy Weiss Manifesto on “Spoonie” Culture

    I'm afraid if it makes it to the pages of the Daily Mail, the answer is yes. Plenty of people believe what they read in the DM and use it to form their opinions accordingly. Beans.
  17. TiredSam

    Landmark trial of NHS staff by King’s College London reveals promising solution to improve mental health

    Who defined "health workers' mental health" as the problem? Surely anyone concerned about the NHS should be looking at structural issues? But of course it's an advert for an app, and seeing as the app "can be of help" for a thing, that thing has to be defined as the problem if you want to sell...
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