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  1. TiredSam

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    How on earth does publishing a booklet and giving it to the DWP count as "internal use"? If it's for internal use only, then keep it to yourself. If you're going to disseminate information based on the reports, be ready to provide the evidence. You can't have it both ways.
  2. TiredSam

    NHS to offer paid-for DNA tests if patients share data

    I might start doing that. Thanks.
  3. TiredSam

    UK Parliamentary debate today - Thursday 24th January 2019

    Was that more or less than the woman who started going on about her football team afterwards? Or the knife crime debate in Westminster Hall?
  4. TiredSam

    UK Parliamentary debate today - Thursday 24th January 2019

    I wonder if it would be useful to ask the 27 members who spoke whether they are surprised that the BBC and national media have failed to report the debate? They must be familiar with the level of reporting that comparable debates get, and it might help the penny drop for when the debate moves on...
  5. TiredSam

    UK Parliamentary debate today - Thursday 24th January 2019

    I'm mild and I'm living half a life. I'd love to know who the people are who don't have to adapt their lifestyles. I think I do know.
  6. TiredSam

    UK Parliamentary debate today - Thursday 24th January 2019

    I hope so. The other possibility is that PACE has served as the stepping stone they wanted, they have now forged alliances for bigger and better schemes, and no longer need to defend PACE tooth and nail, and in fact are now too busy with their greater plans to bother.
  7. TiredSam

    UK Parliamentary debate today - Thursday 24th January 2019

    We hoodwinked 27 MPs into speaking up for us - how powerful are we! What shall we do next with our superpowers?
  8. TiredSam

    Open Quality of life study

    Yes. But not because of the ME. Because of the fucking circus that goes with it.
  9. TiredSam

    Petition: Review treatment of people with ME in Scotland

    Is it just me or is AfME doing more harm than good, just as they always have done? It's getting very frustrating that again and again, just when we get the ears of the right people, AfME get in there and give them the wrong information, harmful to PwME, and pick up large amounts of money for...
  10. TiredSam

    UK Parliamentary debate today - Thursday 24th January 2019

    And the whole BPS crew praying that Michael Sharpe doesn't go on twitter.
  11. TiredSam

    Open Quality of life study

    This slightly concerns me. ME is often wrongly diagnosed as depression, and one of the ways it can be distinguished from depression is that if you ask a depressed person what they would do if they weren't depressed, they'd struggle to come up with much or find any motivation, whereas an ME...
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