Search results

I think that book's one of a series, which also includes "Unlearn your medical education" and "Unlearn your lobotomy".

I find your vicious and unprovoked attack to be unwarranted and insulting. To prevent me having to suffer any further harrassment and abuse I will not be engaging with you further. Please also be aware that should you send me any death threats, I will report them to the police immediately. Zero...

On reflection I don't believe there is such a list. Her use of the phrase "hit list" is a manipulative way of making us sound like we can be bothered to compile such a list and act on it. It's a lie, and she told it. It's just a way of constructing the tried and tested militant activist...

I was referring to the "hit list" which TG claims exists with her name on it: I'm a little annoyed that nobody told me about this list, especially as I'm on the committee and I like a good argument. If we're having a coordinated campaign of online abuse of those who are trying to help us I'd...

Where is this "hit list" of ours by the way? You'd think somebody would have told me.

From Jen Brea's tweet: There's a right way?

Don't know if I've mentioned this before, but until a year or two ago I had a lifelong paralysing fear of spiders, and if no-one was in the house to rescue me when I screamed I'd have to go and get the neighbours. I knew that there was an effective therapy but never went or kept putting it off...

If anyone was attempting to brainwash the elderly with femoral fractures into shaming themselves for not walking around as if their femoral fracture didn't exist then we would have a valid comparison. What bothers me is that we don't have a similar uproar about such a blatently stupid thing to...

Sad that she thinks this is without precedent, especially when she was given a heavy clue in the question. I'd give her one out of three for that answer.

George Monbiot cleverly avoids the word "psychological" in the above section, and in the whole article. Which doesn't allow anyone to come back with that nonsense about psychological v. physical, or psychological illnesses being stigmatised by ME sufferers. Instead he uses "psychosomatic"...

Time to try that spoonful of marmalade ...

I can't even have a bath now, warm water makes me so dopey. It's a shame, because I used to enjoy wallowing in a hot bath, but I haven't had one in the last 7 years, just not worth the risk. As for swimming, in my first year of ME I managed a very leisurely swim in the sea in Italy and enjoyed...

When I was healthy I used to find the opposite, on days when I did sport, I needed 1 hour less sleep that night. I put it down to healthy tiredness leading to a better quality of sleep. With ME I haven't, until very recently, had many days where the difference in activity has been big enough to...

Me too. I have also just noticed that I have no lunula, I'm sure I used to have. I'm also sure my fingers are a little more wrinkly than when I got ME 7 years ago, and my hair is thinner.

Sleep hygiene seems to be another area where common-sense universally accepted recommendations have a very weak evidence base. According to Wikepedia: https://en.wikipedia.org/wiki/Sleep_hygiene#Effectiveness So even if the technology improves and sleep trackers get better, what's the point?

I stopped reading there. Sadly 2 words in isn't my record for deciding not to carry on reading a BPS paper. To be fair I have an analogous test for categorising BPS papers, they don't really stand a chance either.

I've just sent this to a friend of mine. It's just right in terms of length and detail, any longer and people wouldn't get round to watching it, but everyone has 3 minutes.

hyperbaric oxygen therapy was recommended to me by a friend when I got ME, and there's somewhere local where I could have it. I looked into it and decided not to for some reason. Can't remember why, but my past self will have done just a good a job of looking into it as I could do now, so I'll...

It's on Audible (5 hours) for 30,95 euros, or for 9,95 as part of a subscription.

May 2016 Ron Davis “I think that we are very close now to finding a molecular diagnostic marker.” (At around 10:00) Aug 30th 2016 Janet Dafoe “We're going to END ME/CFS!”...