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Indeed. I don't remember Noel Edmonds being invited by the BMJ to tell his cancer story. Of course PG was invited because he is a doctor, and his views will carry the authority of a doctor. Whilst doctors seem to be as susceptible to quackery as everyone else, their profession gives them a...

Sorry to harp on, but "folk science"? I had to look it up on Wikipedia, and it's as bad as I thought: https://en.wikipedia.org/wiki/Folk_science

I could be quite vitriolic before I got ME. ME can affect anyone, from the vitriolic to the placid and pious, and all types in between. Coming down with ME does not mean you have to change your personality to fit someone else's idea of what an ME sufferer should be. Some people are vitriolic...

This is Wallit being Wallit. His involvement in the NIH study hasn't made him change his spots.

I think we should have a new forum rule that all oaths must be minced in future.

I have just learnt that Gadzukes (or Gad zooks) is an example of a minced oath. I've never heard the phrase "minced oath" before, but I rather like it.

Also in my nearest big town, which my GP tried to trick me into making an appointment at by telling me about a great hospital department which specialised in rare illnesses and might just find out what's going on with me. So I called the number he gave me, and the conversation went something...

Looks like various parties will now have an incentive to go into "bury it like Gulf War Syndrome" mode.

I appear to be in the German equivalent of group 6. To my surprise recently I received a letter with vouchers for 12 free masks, the letter was from the German government saying they had been informed by my health insurance company that I'm at risk and therefore entitled to free masks. I didn't...

Are you absolutely shitting me?

Maybe you'll get a mention in @Sasha's unboxing youtube video! "There is no need to do any housework at all. After the first four years the dirt doesn't get any worse. It's just a question of not losing your nerve." - Quentin Crisp

Headaches used to be my main symptom, also my main tracking statistic and warning signal. My ME headaches are unresponsive to any medication, all I can do is lie down, I used to have to lie down for 2 days to get rid of one, now if I'm lucky half a day to a day does the job. If I don't lie down...

I often keep myself awake longer than I should. I'm sure lots of people do. So take a thing (staying up doing stuff longer than you should), make up an explanation for it (compensating for lack of control in the daytime), and hope it starts trending. Indistiguishable from psychobabble to me. I...

When I was about six years old I used to wish I was taller, and over the years, using only the miraculous power of my mind, I became taller. This is probably why some LP investigators prefer to study children, it's easier to get results. Unfortunately I lost the gift later in life, although I...

A selection of PG's words, helpfully summarized in @Valerie Eliot Smith's blog: PG has clearly acquired a new vocabulary from his "international network of evidence specialists". In particular, he has learnt that ME patients are obsessive, paralysed with fear, "mentally low", send unsolicited...

It was a reference in the wikepedia entry for Duration Neglect :) There's quite a heady mix brewing here. PG seems to have swallowed the BPS dogma hook line and sinker as a patient, and fallen for the attractive belief that he caused his own recovery (I wonder which side of the fence he'd be...

Thanks, I was wondering why this song won the recent Cochrane Theme Tune contest:

The imagery of it. Of all the analogies he could have used, why choose that one? Is that really how he sees himself? Oh the bravery, the heroism, standing fast against all the odds, so tough, so fearless. What an example to us all. And to combine those noble characteristics with unwavering...

I think it's a very apt analogy. As far as I'm aware (and anyone who has done military training, in Sefton Park or elsewhere, please feel free to correct me), the correct way to disarm a gun is not by giving it a hard stare. The fact that PG thinks he can do this shows a worrying level of...

I've been pondering "duration neglect" lately (which I first read about in Thinking Fast and Slow). I can no longer remember how it was in the 2-3 years when I was either dragging myself to work with a headache like a zombie or lying on the sofa in between sending myself back to bed every 2.5...