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  1. TiredSam

    '"Together against Post-Covid" Initiative' (survey), University Hospital Tübingen (Germany), May 2021

    Why are these psychological impairments? Anxiety perhaps, but the others? Sadness is a normal emotion, testiness is what I feel when I'm hungry, and sleep disturbance can be due to restless legs or many other physical causes. Surely a better list of psychological impairments would be anxiety...
  2. TiredSam

    2021 John Maddox Prize, nominations are open until 14th June 2021

    I like to think of the John Maddox Prize as a satirical annual ceremony on a par with the Golden Raspberry Awards.
  3. TiredSam

    Is ME/CFS seen as a risk/priority group in the vaccination against sars cov 2 in your country?

    My GP has put me in category 2, so I can expect to be vaccinated with the 75-79 year olds in a week or so (I'm 54, so would be way down the list otherwise). This was a pleasant surprise, I didn't apply for it, my wife phoned the GP and said "what category is my husband in?" and they said "ah...
  4. TiredSam

    BPS attempts at psychologizing Long Covid

    When my car is broken it doesn't stand up on one wheel. They seem to be using their lack of understanding of broken cars as an analogy for their lack of understanding of ME.
  5. TiredSam

    Trisha Greenhalgh on ME/CFS and Long Covid

    I don't know why people boast about getting death threats on twitter, it's hardly an achievement, anyone can do it. I reckon if I suddenly got the urge to receive a few death threats twitter is the place I'd go. I'd just foist some annoying opinions on people and wait. Can't beat a cesspit full...
  6. TiredSam

    New Zealand - Complex Chronic Illness Support including Towards Wellness course

    For me to stay stuck in achiever and perfectionistic patterns, I have to be in them in the first place. How does the author of this know that this is the case, given that I'm on the other side of the planet and they have never met me. What is this assumption based on? Ah. Does this imply that...
  7. TiredSam

    Exploring anhedonia in adolescents with Chronic Fatigue Syndrome (CFS): A mixed-methods study, 2021, Smith, Crawley, Loades et al

    I'm afraid I'm at a loss to find a suitable word in any language for this. Even a string of swearwords doesn't really do it justice.
  8. TiredSam

    Covid-19 vaccination experiences

    AZ now only being given to over 60s in Germany. Latest is that the risk of a blood clot in the brain is especially high for young women. 31 cases including 9 deaths out of 2.7 million vaccinated.
  9. TiredSam

    Covid-19 vaccination experiences

    They were talking about blood clots specifically, and making the point that correlation isn't causation, and that the statistics on blood clots weren't any worse than what you'd expect if people weren't being vaccinated. Which is odd, because according to the news in Germany, although the...
  10. TiredSam

    Odd leg symptom

    Thanks for all the comments. I think I'll just wait for it to go away again. Most things do if you wait long enough, one way or another.
  11. TiredSam

    Covid-19 vaccination experiences

    Anecdotally, quite a few people I know (not PWME) are taking to their bed with flu-like symptoms for a couple of days or more following the AZ first jab, and it's becoming received wisdom around here. My wife had Pfizer on Sunday and is fine. I heard on "More or Less" this morning that...
  12. TiredSam

    Odd leg symptom

    I think you'll find that the average person has 1.9998 legs. Dammit. Am I going to have to start believing in acupuncture or reflexology? That's all I need, to become living proof of a belief system I've never had any time for. Although, hang on ... I think you might have just answered one of...
  13. TiredSam

    Odd leg symptom

    Thanks, it's not painful, more like tickling or pins and needles. And it's not spontaneous (I originally thought it was), but directly caused by touching another part of my body, which is the most perplexing feature, like my wiring has got mixed up. You'll see from my avatar that underpants...
  14. TiredSam

    Odd leg symptom

    Here's a weird thing. In fact so weird I don't even know what to call this thread or what to google. I don't think it's an ME thing, just posting this on the offchance that anyone has a clue. I've been having a strange sensation on the outside of my right shin occasionally for months, a feeling...
  15. TiredSam

    Blog - Hypothesis: ME/CFS as a Breakdown in Homeostasis, 2021, Marks

    According to Barbara Ehrenreich (Natural Causes) homeostasis is just another dodgy concept that has been accepted without much question since it was coined about 100 years ago. Your cells do what they want and go to war with each other without reference to you or anything you do. Macrophages...
  16. TiredSam

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    We had quite a chat about the placebo effect here: https://www.s4me.info/threads/placebo-effect-discussion.10017/#post-307560 The placebo effect can only cause a subjective feeling of improvement, but is not able to cause objectively measureable improvement. The common perception of the...
  17. TiredSam

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I most certainly did, and as evidence I would refer to the numerous ways variations on the positive thinking myth have been used to abuse our patient community over the last few decades, the role it plays in the patient-blaming we are all familiar with, and more widely how it has become commonly...
  18. TiredSam

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Those who claim that positive thinking can affect illness recovery have the burden of proof, because they are making the claim. The only knowledge you need is what constitutes sufficient evidence. PG's n=1 anecdote of how he thinks he recovered certainly doesn't, it's far more likely that he...
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