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  1. TiredSam

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    @Valerie Eliot Smith can I ask why is copyrighted already?
  2. TiredSam

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    Trying to agree what it is various PWME and their organisations want to say could be a divisive nightmare. Arguing about definitions with the "true ME" brigade? People attributing causes or views on "what is known" which others aren't comfortable with? I have concerns about trying to beat the...
  3. TiredSam

    Stuart Ritchie, science journalist, articles on science fraud and open science

    Reminds me of the online poker boom when various cheats and even casinos were caught out by dedicated players who got the data and knew what to do with it. Also online chess sites are good at catching cheats. For some reason it really matters to gamers. Those who don't follow the rules and play...
  4. TiredSam

    “Positive” Results Increase Down the Hierarchy of the Sciences, 2010, Fanelli

    Psychiatry/Psychology seem to be attractive options for those who like being right more often than everyone else. Especially those who like being right without having to think much. Perhaps it's time for a study on the personality traits of those who chose a career in psychology. The whole field...
  5. TiredSam

    New Documentary "Living with Chronic Fatigue Syndrome"

    I watched it yesterday with my wife. I appreciate that it was made and hope it will increase awareness. However I found it impossible to watch from the point of view of someone who doesn't have ME or is new to the subject, and as I have seen a few films showing the daily routines of PWME...
  6. TiredSam

    The obesity wars and the education of a researcher: A personal account, 2021, Flegal

    I don't know anything about this issue, but just reading the paper, I was struck how Sharpe, White and Wesseley could read it and identify with Kathy Flegel, and claim that exactly the same thing had happened to them. All the things that were said about Flegel's paper are things that we have...
  7. TiredSam

    Influence of Priming on Patient-Reported Outcome Measures: A Randomized Controlled Trial, 2016, Claessen et al.

    Another paper we can add to the pile of dodgy priming research, which according to this site is a trainwreck: https://replicationindex.com/2017/02/02/reconstruction-of-a-train-wreck-how-priming-research-went-of-the-rails/
  8. TiredSam

    Guest Blog MEA: The Shame

    From the article: I was disappointed when I found out that the cyst in my pituitary gland wasn't a brain tumour or causing any problems and wouldn't have to be removed by opening up my face with an X% chance of success. I think I was rather looking forward to it. Anything to stop the first few...
  9. TiredSam

    Psychiatry's modern role in functional neurological disorder: join the renaissance, 2021, Begue, Perez et al

    I thought the renaissance was when we transitioned from the middle ages into a scientific revolution which included the development of the scientific method and a focus on empirical evidence. Can they use another word? Or if they must borrow the word "renaissance" for their title, how about...
  10. TiredSam

    Time to assume that health research is fraudulent until proven otherwise?, 2021, Smith

    There seems to be a giant schoolboy-style competition amongst rather a lot of people, where they all sit in a row on both sides of a fence until the first one gets a splinter up their a***. I'm sure it's all a great joke and they're having a lot of laughs, but isn't it time the bell rang for the...
  11. TiredSam

    Covid-19 vaccination experiences

    I'm the kind who rarely catches anything, but then I always was before I had ME. On the rare occasions when I do get something, it usually floors me. My reaction to two jabs of biontech pfizer was uneventful, apart from the side of my face going numb after the second jab, detailed in my post above.
  12. TiredSam

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    As a member of the patriarchy I'm trying to work out whether I'm going to end up at the top of the pile or the bottom of the pile once all these people have finished waffling.
  13. TiredSam

    Audio distraction: podcasts, audio books, radio on demand

    Second episode is about Munchausen's Syndrome by Proxy, and equally good. I have a feeling I'm going to enjoy this series. https://www.bbc.co.uk/programmes/m000s2kt/episodes/player
  14. TiredSam

    Audio distraction: podcasts, audio books, radio on demand

    I heartily recommend this: https://www.bbc.co.uk/sounds/play/m000s7n1 A 30-minute investigation of the Stockholm Syndrome. I don't want to spoil it, so I'll just say I was extremely satisfied with the conclusion. There are many parallels to our situation, and anyone with ME will find...
  15. TiredSam

    Research news from Bhupesh Prusty

    I had a look at the Würzburg clinic website. There's a lot about cancer patients and the fatigue they have, and also a lot about palliative care. In the absence of further information and speculating optimistically, hopefully they are referring to palliative care.
  16. TiredSam

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I remain to be convinced that finding and handing over a large amount of money to a PR company for a media campaign is the most effective solution to our woes. And as for judicial review, the current uk government are doing their best to rush through reforms which would limit its scope...
  17. TiredSam

    Stuart Ritchie, science journalist, articles on science fraud and open science

    The Spectator never even had my trust. A publication which boasts Rod Liddle as associate editor and columnist isn't something I'd wipe my dog's arse with.
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