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That'll be what my neck's for then. Just making good on my promise to pinch and use that remark: Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

@phil_in_bristol my comment was not about you or Dr. John Greally, but about Liz Carlson's website. If someone attaches themselves to anything and everything they can by taking advantage of every opportunity for self-publicity to promote their mission, they will end up attaching themselves to a...

Fine with me, although it might not be to everybody's taste, and may come across as the paranoid ravings of a lunatic to anybody outside our circle. Let me know what reaction it gets :)

How quickly the habit of ignoring patients' voices spreads, once you invite people into your organisation who have always behaved that way.

Anyone who takes an idealogical approach to medicine which depends upon ignoring and denigrating patients, and doesn't pause to reflect that their professional life now consists of being rude and abusive to those patients on a daily basis, has no place in medicine, let alone a patient support...

I had a look at Liz Carlson's website full of quackery and nonsense when she interviewed @phil_in_bristol. Now she's found another opportunity for self-promotion. Do we need any more ME personalities peddling quackery? I'm sick of them.

I didn't read beyond the first two words.

Breathing as a treatment for ME is a thing, recommended by some familiar names (Lapp, Cheney ... ): https://www.healthrising.org/forums/resources/breathing-techniques-for-chronic-fatigue-syndrome-and-fibromyalgia.495/ I thought I'd better give it a go about a year ago so downloaded an app and...

Yes, it looks like a bit of a stretch to me.

Done.

Oh yes. We'd have to win on this criterion.

Permit me to quote from part 4 of my blog, and my discussion with Dr Hanitsch (one of the authors of the above paper):

3 of those authors are from the Charite in Berlin, where the CFS department is based in the immunology department. One of them gave me my diagnosis. Before I went to the Charite, I had to confirm that I was more susceptible to infections, which I felt was rather unfair to those CFS sufferers who...

Well that makes it 5 years since OMF started regularly spreading messages of hope. Open Medicine Foundation (OMF)

I may have to move from the Barmer.

Many ME sufferers can't interact with the health service due to fear of death. Many of us can't go into a hospital and feel safe that we're actually going to come out alive, and even if we do, there's a very real threat that what remained of our health will have been ruined. Exactly who poses a...

If only BPS nonsense was met with this response everywhere. Hopefully it'll be a growing trend.

She talks about mitochondrial disorder, Lucinda Bateman is interviewed. Madeline's treatments include an intravenous vitamin cocktail and expensive "naturopathic" remedies. I'm suspicious of any claims to know what causes ME, and am very sceptical of naturopathic remedies and supplements etc...

I've just started listening to this, and have listened to the first two episodes. It's absolutely excellent and seems to cover a lot of ground well, the history of ME, the history of hysteria. I wasn't sure at the start, also about how the illness and treatments are described, but this is...

Shall we research whether there's a relationship between personality characteristics and cancer? Oh, sorry, that one's been done by Eysenck. And then checked here: https://pubmed.ncbi.nlm.nih.gov/12783934/ Well ok then, how about stomach ulcers and personality? Or something? Anything? Long...