Search results

  1. TiredSam

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Things I have learned today: "Medical leader" is apparently a thing. How far the some of the royal colleges have gone to the dogs. How little neurologists have to offer, and how nasty they are about it. I also think there might finally be something useful for lawyers to get their teeth into...
  2. TiredSam

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Well that's true. When people with physical health problems are treated abusively and gaslighted, they can get pissed off.
  3. TiredSam

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    What is this "NICE recommended Graded Activity Management (GAM)" of which they speak? Just a rebranding of NICE's 2007 recommendations? Are they trying to GAMe the system with their new name?
  4. TiredSam

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I can never remember which one is which, and simply can't be bothered to make the mental effort to distinguish between the two. They are simply not worth it. I just think of them as a pair, like Tweedle Dum and Tweedle Dee. One of them is always on twitter saying "have you read the paper" - so...
  5. TiredSam

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Learning to live with CFS/ME (sic) is the best way to help patients to create the optimal conditions to recover from it, implying that there is a conflict between accepting your limits and recovery, when in fact accepting your limits is the best way to maximise your chances of recovery, is a...
  6. TiredSam

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Some clinicians can and do. Esther Crawley will change a child's diagnosis from CFS to Pervasive refusal syndrome as soon as the child doesn't do what they are told. Parents can go from no diagnosis to whatever the new name is for Munchhausen's by proxy, even if they weren't the ones coming in...
  7. TiredSam

    Press release: Inspiritol Effective In COVID-19, Long-COVID And ME/CFS Patients

    https://salernocenter.com/ Quack on the make peddling snake oil. Looks like he's been spraying his hair with it.
  8. TiredSam

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Breathing for ME is a thing, one of the doctors of renown in the US recommends it, I can't remember which one. I got a breathing app and practiced breathing lying on the floor for a few weeks, but it made no difference and I got bored so I stopped. I was asked today whether I'd tried yoga.
  9. TiredSam

    Open Functional microbiome study (Stanford)

    Another sign that times are changing - now someone wants to receive shit through the post from militant activists.
  10. TiredSam

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I had my sleep monitored once. Even hooked up to a machine measuring everything, and feeling that I had been tossing and turning all night, the dr said that according to my graphs I had had a better night's sleep than most of his other patients, and had nothing to worry about. I wasn't worried...
  11. TiredSam

    Trisha Greenhalgh on ME/CFS and Long Covid

    Different kinds of evidence, alternative facts, speaking your truth ... She really doesn't get science.
  12. TiredSam

    TV Program: Clapped Out: Is the NHS Broken?, Dispatches, Channel 4, UK

    I haven't watched this, but I've enjoyed Matthew Syed's book and podcasts. He's pretty good at debunking nonsense, for example he did a very good episode on the Stockholm Syndrome, and another on subliminal advertising and subliminal self-help recordings, debunking both of them...
  13. TiredSam

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    I do empathise with Michael Sharpe's sorrow at not being about to control what is in the media any more. He must wonder what the world is coming to. Up to a few years ago the SMC had complete control of the narrative in the national UK press. Now he's reduced to writing letters to the Daily...
  14. TiredSam

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    The comment seems to have disappeared - that was quick! They must have noticed how firmly I pressed the button.
  15. TiredSam

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    There's a button you can press - "report this post as unsuitable or offensive" - which I did.
  16. TiredSam

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Surely after the barrels he's stared down a bit of paperwork should be a piece of cake? Looks like catastophizing to me.
  17. TiredSam

    Towards a sociological understanding of medical gaslighting in western health care (2021, Sebring)

    Stopped reading right here. Medical gaslighting is an important issue, and I'm sure on average it's a bigger problem for women than for men. But I simply can't bear to see it hijacked as a vehicle for Foucauldian nonsense. This article is so full of buzzwords one of my students could have...
Back
Top Bottom