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  1. TiredSam

    BPS attempts at psychologizing Long Covid

    In fact Michael Sharpe can congratulate himself - for years he has been complaining that ME sufferers have been blocking psychological research, making himself believe that it is true, talking as if it were true, and now it has come to pass. What an amazing demonstration of the power of Michael...
  2. TiredSam

    Australia and New Zealand clinics: Specialised Health

    One of the first things I noticed about ME was that I no longer got any feel-good endorphins from exercise. In fact I started getting some feel-really-shit endorphins. So I should be taken to a gym and those feel-good endorphins will magically come back as if it was all just a dream? I have...
  3. TiredSam

    Reclaiming terminology for ME/CFS

    It happens. We have to put up with people hijacking terms all the time, as in "that's a bit OCD" or "that's a bit autistic". Annoys me every time I hear some ignoramus hijacking a word like that, but what can you do?
  4. TiredSam

    BPS attempts at psychologizing Long Covid

    Campaigning to stop marketing and empire building disguised as research is a worthy endeavour in my opinion. What's this focus on "a good look" anyway? Just illustrates how Sharpe has got his priorities all wrong - not everyone is interested in building a career on looking good to the right people.
  5. TiredSam

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I'm sure this point has been made before, but didn't the BPS lot say that if GET didn't work, it was either the fault of the patient, or the therapist, for not doing it properly. Now apparently the patient and therapist colluding to work out their own version of GET is what they've been doing...
  6. TiredSam

    News from Germany

    Is there any evidence for any of this?
  7. TiredSam

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    There are quite a few stories about ME/CFS that are yet to break. PG can get to the back of the queue with his.
  8. TiredSam

    Unexplained vs explained symptoms: The difference is not in patients' language use. A quantitative analysis of linguistic markers, 2021, Stortenbeker

    The passive verb avoids having to say who's doing the believing. Presumeably clinicians. The English not First Language defence isn't good enough, if the authors are presuming to carry out a linguistic analysis, a competent understanding of the language they are analysing should be a given...
  9. TiredSam

    BPS attempts at psychologizing Long Covid

    Oh the irony. Maybe this chap should practise mindfulness to improve his ability to pay attention to the evidence, or lack of it.
  10. TiredSam

    News from Doctors with ME

    A google picture search gives hundreds of results for this picture. In some cases it is credited to Shutterstock/AshTProductions. Here is AshTProductions: https://www.shutterstock.com/de/g/AshTproductions And if I'm not mistaken, our favorite model:
  11. TiredSam

    News from Doctors with ME

    Voila (discussion of exhausted model at desk): Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)
  12. TiredSam

    News from Doctors with ME

    Not wanting to be nitpicky, but the we've seen that picture at the top of the article before, a few years ago. I'm used to the media using rubbish stock photos of models at a desk rubbing their head to represent ME, but I'm disappointed to see a patient organisation use it. I suppose it's...
  13. TiredSam

    Aphaeresis/ Apheresis (for removal of microclots)

    Private doctors were offering Rituximab privately for 10k a time before the blinded trials were finished, even though they were asked not to. Doctors are performing expensive and damaging spinal surgery. Now we have this. It's a pattern we are sadly seeing regularly - going straight from...
  14. TiredSam

    Opinion piece: Long covid: new wine in need of new bottles, 2021, Bannerjee

    When my kids were small, when it went quiet was the time to start worrying what they were up to.
  15. TiredSam

    Esther Crawley

    The Prudence Trust doesn't seem very prudent to me. But then it was only set up in 2020 and has Simon Wessely on their advisory panel, so we're stuffed. I suspect some kind of astroturfing / territory grab going on here.
  16. TiredSam

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I'd like to put a fiver on them having just made it up please.
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