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I think suggesting that OMF's regular publicity and fundraising drives be tailored to reflect the reality and experience of the last 6 years that they have been doing it is a helpful suggestion. It would certainly be helpful to the millions of ME sufferers who are regularly having their hopes...

Another one for the album. On Jan 1st 2021 Whitney wished us "Happy Cure Year" on facebook, so I was expecting a cure in the next 3 days. We are now in our 6th year of those folks at OMF promising us great things just around the corner. You'd think they'd have realised by now that things don't...

That's not how reason works.

It was only a matter of time. I'm sure her heart's in the right place. Sadly we aren't exactly short of celebrities who seem to understand and initially give us hope, only for it to end with them spouting unhelpful nonsense in interviews or becoming associated with charlatans. Worse is when...

A christmas update: https://garyschemodiary.wordpress.com/2021/12/16/a-wonderful-christmas-time/

I had a doctor until about 15 years ago who thought it was funny to call me Sir Samuel (what with me being British and all). I went for a routine vaccination once and was sitting waiting with my sleeve rolled up when he burst into the room holding the needle aloft, and said "Samuel, receive the...

A lot of the names of attendees look familiar. Seems to be a collection of people who have previous in saying stuff, and now they are meeting to say more stuff. I won't be holding my breath for anything meaningful to come out of this.

FFS.

Most large businesses have something called customer services, where ungrateful or angry customers can be listened to, have their dissatisfaction resolved, and the company can make amends or change its procedures to make sure those who interact with them don't end up ungrateful or angry again...

I didn't have any, apart from a tingling / numbness in my face for the rest of the day.

Me too. As soon as I saw that "word" I decided not to read any further. Not that I was going to read it anyway, but now I'm definitely not going to. The kind of shite people with zero relevant qualifications write. He also wrote this: etc etc etc So he's into anything and everything and wants...

Yes, thinking about it, it would be a strange universe where Piers Morgan didn't have the answer to something.

Piers Morgan has probably been trying lots of meds. The one he happened to be taking when he improved is now being given the credit. If the med really has "cracked it", I look forward to finding out what this cure for ME is and when the randomised controlled trials are to start. Sorry if I'm...

Unfortunately forum rules don't allow medical advice or diagnoses, so I'll just say I suspect you may be.

That was on June 8th, the numbness went away again after 2 days. Just had my Moderna booster 6 hours ago. To be honest I was rather apprehensive about side effects, reading everyone else's posts on this thread and anecdotes from people I know, but so far so good. I had the face thing again, but...

I beg your pardon? I wasn't aware that my illness experience needed legitimation? Woolly nonsense that happens to sound like it appreciates some important points and arrives at a few conclusions I may agree with is still woolly nonsense and bugger all use to me. If this subject is to be...

I have this occasionally. It's not part of my usual routine, but it has happened once or twice in the last couple of weeks, before that it hadn't happened for a while. Just lights out, no other option than to lie down and sleep, can't even keep my eyes open to slouch and watch tv. I usually put...

This paper still leaves the cause of my ME completely unexplained. Oh well, I'll just have to hope there are researchers studying other possible causes.

He can always be counted on to send the eyebrows shooting off the top of my head.

With such an introduction the author was probably expecting universal gratitude from "modern women" everywhere, and will be baffled by any other reaction. Sheesh, there's no pleasing the ladies, right? Try to understand and help them and what do you get in return? It's enough to make a chap go...